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Mary L: Morphea

I was denied enlistment into the United States Army because of this disease.

Yellow and Purple Daisies by Sherrill Knaggs, ISN Artist My name is Mary. I was diagnosed with morphea when I was ten years old. It started out as one six inch lesion under my right breast. I now have lesions covering my entire torso and back.

I was always told there was nothing they could do to help me and now I am stuck with these spots that keep growing and spreading. I need to know if there is anything I can do aid in helping my skin. I know they will never go away but I need to figure out something.

My three-year-old son now has one lesion behind his left ear. I was told it was unlikely he would ever get morphea. I am now afraid to have more children because I don't want them to go through what I have gone through.

I think that more people need to learn about this disease so that children with this do not get the harassment I received growing up.

My mom had the department of child services call on her because someone said I was all "bruised".

I was denied enlistment into the United States Army because of this disease.

If there is anyone out there who wants to help me inform others of this disease please contact me. Thank you.

To Contact the Author

Mary
Email: [email protected]
Story edited 01-19-08 JTD
Story posted 01-22-08 SLE

ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Thompson Devlin
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ISN Artist: Sherrill Knaggs (In Loving Memory)

Sherrill KnaggsSherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

Go to Mary S: Diffuse Scleroderma
 
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