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Marzia: Morphea

I wanted to tell you all this, because I hope that for you things may go better.

Daisies for Marzia by Sherrill Knaggs, ISN ArtistLet me introduce myself, my name is Marzia, I am a twenty-two-year-old girl. Three years ago I described my situation on this site (see my original story, in Italian).

I am affected by morphea and at that time I took three pills of piascledine and used Elocon to fight the spots I had on my skin.

To be honest this cure only served so that the spots in my thighs receded, for they at first turned hard and had that famous ivory tone in the middle of the spot. Now only the maroon spots remain, while those in my wrists are still there, and they go from dark to light continuously. For a moment I was convinced it ended there, and that my situation would become stationary. Also the dermatologists told me (they still tell me) that the spots are "stationary", but recently I realized that the spots in my wrists keep on appearing (they have increased by three in about three years), and sometimes my wrists hurt, especially when it is cold.

Two more dark spots have appeared, always oval, 2-3 cm in diameter, one in the lower stomach and another one close to another spot inside the thigh. I suffer from pain that goes from my hips to halfway through my femur. The dermatologist gave me Elocon together with vitamin E and a cream (mela-d), that according to her would help me get rid of the spots. I have taken X-rays, blood tests, so on. Every doctor I have been to, seeing that I am a young, healthy-looking girl, asks me why I go and take so many tests at my age. They start laughing, and then tell me I am very healthy. Even though these doctors with all their analyses have told me that I am healthy, I am in so much pain at such young age and they still say there is nothing wrong?!

Morphea is there, you can see it, and the biopsy confirmed it. The specialists tell me not to worry too much for the time being, while I am still young and my situation is not as bad, but that I should feel alarmed if I start to notice strange symptoms. The only thing I can do right now is to get doctor check-ups periodically.

Maybe what is needed for doctors to take you seriously is just to be constantly sick. I am sorry for having taken so much space to write down my story, but I wanted to tell you all this, because I hope that for you things may go better. So for those who suffer of morphea like me, since I have been taking vitamin E and using the mela-d cream, the spots haven't disappeared, but my skin looks better, healthier in all of my body.

I hope this helps you. A big hug to you all and good luck.

To Contact the Author

Marzia
New email address needed 08-06-09 SLE
Old Email Prefix: fiorediluna3
Italian story posted 07-05-04
Story update translated 03-18-06 AL
Story update posted 06-07-06 SLE

ISN Senior Artist: Sherrill Knaggs
Story Update Translator: Alba León
LINKS
(Italiano) Marzia: Morphea
Morphea Scleroderma (Italiano)
Morphea Scleroderma (English)
Sclerodermia (Italiano)
Tipi di Sclerodermia (Italiano)
Morphea Scleroderma (English)
Morphea Stories (English)
Types of Scleroderma (English)

ISN Artist: Sherrill Knaggs (In Loving Memory)

Sherrill KnaggsSherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.

ISN Translator and Editor: Alba León

Alba LeonAlba León is the ISN Translator for this page. She is studying international relations in Mexico City.

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