I am sixteen now and I have had morphea for about two to three years. When I first started to develop small red spots on my trunk (stomach), I thought it was just a rash of some sort. When they got bigger, I thought they were ringworm.
I finally went to the doctor. They gave me some fungal creams and gave me another doctor's name because they did not know what it was.
I went to the other doctor, and she took a biopsy. She called me back about a week later telling me that I have morphea. I was very sad to hear that they would never go away but later new ones might be prevented.
I cried for about a week. By this time they were getting bigger, about the size of a tennis ball. I should be going to a dermatologist right now to keep track of the sizes, but seeing as I am only sixteen and my dad has no time to take me, I am just sitting and watching them get bigger.
Only one of my spots (I have about five or six) is really hard and yellow. When I go out I put a Band-Aid over it and if anyone asks, I tell them the others are bruises. I am afraid to tell anyone that it is morphea, because it sounds so gross.
I am getting more and more afraid that they will spread. But I have to say I am getting more comfortable with them. It does not bother me as much when I look in the mirror, and I am back to wearing a bathing suit. I have just accepted that they are there, and that I cannot do anything about it.
New email address needed 8-22-03 SLE
Old Email Prefix: tangy17
Story posted 8-26-01
ISN Senior Artist: Sherrill Knaggs
The story on this page is featured in our book, Voices of Scleroderma Volume 2! ISN.
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