SCLERO.ORG
Search
Patient & Caregiver Stories Main Menu

(English) by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z

By Language: French   German   Greek   Italian   Polish   Romanian   Russian   Spanish   Turkish

By Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms

Melanie W: Linear Morphea

"The only good thing about this disease is that it makes you a better person."

birdhouse I am eighteen years old and have been diagnosed with Linear morphea for two and a half years.

It started as a small white patch on my neck. It soon grew up my neck, and I have lost hair in that spot. I now have brown and white patches of skin all over my upper back. I am self-conscious of it, so I won't wear my hair up, or wear little tank tops.

My doctor says there's no treatment and that my scars will be there forever. I hate that feeling. The only good thing about this disease is that it makes you a better person. I am modest about myself and am thankful for what I do have.

I have to thank God that that is all I got from the disease. A lot of people have it worse.

To Contact the Author

Melanie
Email: [email protected]
Story edited 10-8-02
Story posted 10-9-02 SLE
LINKS
Juvenile Scleroderma
Linear Scleroderma
Morphea Scleroderma

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

Go to Melinda: Granddaughter of Systemic Scleroderma Patient
 
United Way of Central New Mexico
United Way of Snohomish County
See ISN News for recent donors, including memorials for
Frances Maude Baldwin Watson, Rubye Mai Blocker Westmoreland.
Thanks to Tamika Forteau and Paul and Margaret Phifer for raising scleroderma awareness!
Donate or Shop Now
 

TOLL FREE HOTLINE, U.S. and Canada: 1-800-564-7099
Ask for our Free Info Packet by email or postal mail!

SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
Email [email protected] to request our Welcome email, or to report bad links or to update this page content. Privacy Policy.
 

The most important thing in the world to know about scleroderma is sclero.org!

Donate Now
Copyright 1998-2017, International Scleroderma Network. AKA Scleroderma from A to Z and SCLERO.ORG. All Rights Reserved.