SCLERO.ORG
Search
Patient & Caregiver Stories Main Menu

(English) by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z

By Language: French   German   Greek   Italian   Polish   Romanian   Russian   Spanish   Turkish

By Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms

Melissa H: Hereditary Hemorrhagic Telangiectasia (HHT)

I have big red marks on me which I get teased about, but not as much as I used to.

Pink Impatiens for Melissa H by Sherrill Knaggs, ISN Artist Hi, I am Melissa and I was born with hereditary hemorrhagic telangiectasia (HHT). My brother and I both have it, but I have it much worse.

I have big red marks on me which I get teased about, but not as much as I used to. I also have a bad liver, so I am never allowed to drink alcohol. My face is usually red from my heart beating too fast, and my skin is blotchy.

I do not really care any more as I might be getting the red mark removed with laser treatment when I am older, which will be really good. If any one else has this disease, please email me. It would be really cool to hear from you.

To Contact the Author

Melissa H.
New email address needed 07-18-06 SLE
Old Email Prefix: missywasup
Story posted 08-12-04 SLE

ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Devlin
LINKS
Telangiectasia

ISN Artist: Sherrill Knaggs (In Loving Memory)

Sherrill KnaggsSherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

Go to Melissa M: Morphea
 
Recent Donors
See ISN News for recent donors, including memorials for
Christine Kane, Lilian and Lee Stiles, Charles Kendrick Watts and Marta Marx.
 

SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA

Email [email protected] to request our Welcome email, or to report bad links or to update this page content.

TOLL FREE HOTLINE 800-564-7099
Free to U.S. and Canadian Callers. Ask for our Free Info Packet by mail or email!
Scleroderma, Pulmonary Arterial Hypertension, and related illnesses.
Privacy Policy.

 
The most important thing in the world to know about scleroderma is sclero.org!
Donate Now
Copyright 1998-2017, International Scleroderma Network. AKA Scleroderma from A to Z and SCLERO.ORG. All Rights Reserved.