My daily schedule is so bad. I can hardly get out of bed. I can hardly sleep my joints hurt so bad. I cannot even do much housework because I get out of breath easily. I cannot work because I am not always able to get up in the mornings to get to work.
They say I am not eligible for a medical card or disability. I have been fighting for four years. I got a lawyer but the court and state say I am still not disabled. They do not see my scleroderma. They said lupus should not stop me from working.
I am not looking for pity. I just need some answers.
Story edited 10-24-06 JTD
Story posted 10-26-06 SLE
ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Devlin
Types of Scleroderma
What is Scleroderma?
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to: