Patient & Caregiver Stories Main Menu

(English) by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z

By Language: French   German   Greek   Italian   Polish   Romanian   Russian   Spanish   Turkish

By Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms

Monika K: Morphea Scleroderma

I am now forty-one years old and my husband affectionately calls me "Spot."

Flowers for Monika by Shelley Ensz At the age of eleven, I was visiting my relatives for the first time by myself. I stayed at their lake for a week. Every day I would be in or next to the water. I got a bad sunburn on my back and shortly after the burn healed, my mom noticed a football shaped blotch on the centre of my back. She was a bit concerned but because it did not seem to itch, so we did not do too much about it until it started to grow.

It got larger (until it was bigger than a football) and we had it checked out as it was spawning more little blotches over my torso.

I am now forty-one years old and my husband affectionately calls me "Spot." The doctors I have gone to over the years said that stress also contributes to their spread.

So I try to stay stress free. When wearing a bathing suit, if I am embarrassed by my spots, I use a pretty wrap to help conceal them. When it is just us or friends that know me really well, then I will sometimes wear a two-piece swimsuit.

To Contact the Author

Monika K.
New email address needed.
Old Email Prefix: mjkeddy
Story posted 9-28-01
Story edited 6-30-03

Story Artist: Shelley Ensz
Juvenile Scleroderma
Morphea Scleroderma
Types of Scleroderma
PDF Brochure: What is Scleroderma?
Go to Moomary: Diffuse Scleroderma
Most Recent Donors

Winn Schillberg
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!

In Loving Memory

Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.


SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA

Email [email protected] to request our Welcome email, or to report bad links or to update this page content.

TOLL FREE HOTLINE 800-564-7099
Free to U.S. and Canadian Callers. Ask for our Free Info Packet by mail or email!
Scleroderma, Pulmonary Arterial Hypertension, and related illnesses.
Privacy Policy.

The most important thing in the world to know about scleroderma is!
Donate Now
Copyright 1998-2016, International Scleroderma Network. AKA Scleroderma from A to Z and SCLERO.ORG. All Rights Reserved.