I am twenty-eight years old and I live in Montevideo, Uruguay. I was diagnosed when I was eight, after years of studies of every kind, to figure out what was going on with me. As the years went by I began to become more conscious of how complex this illness is. For many years I was tortured by the pictures and sad news that I refused to accept.
Today, after two pregnancies and normal births, I have two beautiful and healthy children, one is four and the other six. Many times I have cried thinking that I may not see them become adults and form their own families, but then again, who really knows that?
Some days I wake up in a lot of pain, or when I am fixing breakfast for my kids I drop things because my hands become rigid. But a lot of that “clumsiness” and the pain disappears when I see everything I have: a family to run, a job, many friends, and most of all, a lot of energy, I feel like nothing can stop me from living life to the fullest.
Story edited 07-14-09 JTD
Story posted 07-17-09 SLE
Story Artist: Shelley Ensz
Story Translator: Alba León
Story Editor: Judith Thompson Devlin
Nathalia: Esclerodermia Sistemica Progresiva
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Alba León is the ISN Translator for this page. She is studying international relations in Mexico City.
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