I am twenty-eight years old and I live in Montevideo, Uruguay. I was diagnosed when I was eight, after years of studies of every kind, to figure out what was going on with me. As the years went by I began to become more conscious of how complex this illness is. For many years I was tortured by the pictures and sad news that I refused to accept.
Today, after two pregnancies and normal births, I have two beautiful and healthy children, one is four and the other six. Many times I have cried thinking that I may not see them become adults and form their own families, but then again, who really knows that?
Some days I wake up in a lot of pain, or when I am fixing breakfast for my kids I drop things because my hands become rigid. But a lot of that “clumsiness” and the pain disappears when I see everything I have: a family to run, a job, many friends, and most of all, a lot of energy, I feel like nothing can stop me from living life to the fullest.
Email: [email protected]
Story edited 07-14-09 JTD
Story posted 07-17-09 SLE
Story Artist: Shelley Ensz
Story Translator: Alba León
Story Editor: Judith Thompson Devlin
Nathalia: Esclerodermia Sistemica Progresiva
Medical: Diseases and Symptoms
Scleroderma Experts (Worldwide)
Symptoms of Systemic Scleroderma
Types of Scleroderma
What is Scleroderma?
Alba León is the ISN Translator for this page. She is studying international relations in Mexico City.
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
Email [email protected] to request our Welcome email, or to report bad links or to update this page content.