I was diagnosed with dermatomyositis in 2001, just a few months after I had my baby. My life has changed in a good and bad way. I am learning to live life to the fullest as if it was the last day of my life.
At first it was hard, but I have learned to accept this illness. I am twenty-eight years old with a four-year-old girl who gave me the will to live when I wanted to give up. I lost all my hair in just a few weeks. Then I gained a lot of weight. My face and the skin on my whole body looked like someone who had been buried for two weeks.
I just knew then that my child's father would leave me, but he stood by my side and later became my husband even when I thought I looked like a monster.
Life is very painful for me every day I wake up, but the Lord is on my side so I must have faith.
New email address needed 08-06-09 SLE
Old Email Prefix: denisejg
Story posted 02-11-05 SLE
Story Artist: Ione Bridgman
Story Editor: Judith Devlin
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