On April 18, 2006, my mother died of fibrosis of the lung. We watched her struggle daily to breathe, yet there was nothing anyone could do, not even the doctor.
She was diagnosed about four years ago, first as pneumonia. We watched her lose weight at a rapid pace and her breathing became more difficult.
In her final stage she was bedridden and the oxygen she was taking no longer could produce any air to her lungs. She asked to go to the hospital on Monday April 17, 2006. She said that she was going to die that day, but instead she died early Tuesday morning about 1:40AM.
Our family is devastated. There was nothing we could do. We love our mother with all our heart and watching her leave us, no one can imagine what it is like unless you have experienced it yourself.
My mother was seventy-five years young.
I hope that there is a cure soon. There seems to be some form of medicine you can take for every other illness to prolong your life, but there is nothing you can take for fibrosis of the lungs, in the later stages.
Email: Withheld by Request
Story edited 05-01-06 JTD
Story posted 05-02-06 SLE
Story Artist: Shelley Ensz
Story Editor: Judith Thompson Devlin
Survivor Stories in Memory
Fibrosis of the Lung
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
Email [email protected] to request our Welcome email, or to report bad links or to update this page content.