Hello, I am a twenty-six-year-old girl and about six years ago my legs and hands began to swell up. I also remember that I always felt cold. Then, while I was working one day I realized that some of my fingers had no sensation anymore. There were practically times when I had no sense of touch. Afterwards I learned to understand when this would happen: when I got excited, with temperature changes, but mostly when it turned cold.
I went to so many hospitals. They tried cortisone and antihistamines, but nothing worked. After some research, they diagnosed me with lupus. I took medicine, but nothing helped and the pain was getting worse.
This did not end until I met a girl from Rome who has the same illness, and she took me to her rheumatologist. I started to recover very fast, and now I go there every fifty days.
I can go forward thanks to treatment. Thanks to this center my illness, not lupus, has receded, although it is not gone completely, but at least now I can write and do things that I didn't think I would do anymore.
I read all the stories on sclero, and I thank God my organs haven't been touched. If I can say my own, I feel bad knowing that I also have it. But I keep on fighting because I have a will to live, so I say to everyone: don't give up, keep going.
(Italiano) Rafvis: Sclerodermia Sistemica
Types of Scleroderma
What is Scleroderma?
Alba León is the ISN Translator for this page. She is studying international relations in Mexico City.
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to: