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Salina: Surviving Granddaughter of Scleroderma Patient My grandma died about two years ago from scleroderma. I am not too sure when she was diagnosed, but when I was in the sixth grade, we found out that she was sick…

Sam H: Telangiectasia I have had telangiectasias since I was two years old. I am now fourteen…

Sandie: CREST with Raynaud's I consider myself very lucky to have received my CREST diagnosis at an early stage…

Sandra C: Morphea A few months ago I began a special treatment with UVA 1 photo therapy and my condition has improved considerably…

Sandy: Diffuse Scleroderma After years of complaining about various symptoms to doctors, I was diagnosed with Diffuse Scleroderma in 1993…

Sandy A: CREST Syndrome I have had surgery to remove the calcinosis on my knee and forearm twice, and once on my elbow. Yet it always comes back…

Sandy J: CREST Scleroderma I have had an ileostomy for two years and a feeding peg for just over one year, and would appreciate comments from any person who also has one or both of these problems…

Sandy R: Spouse of CREST Patient My husband has been having all kinds of things happening to him that just did not seem right…

Santo: Sjogren's Syndrome (Italy) I visited gastroenterologist, mouth experts, dentists, ears, nose and throat specialists, and none of them could explain the symptoms…

Santolupo: Diffuse Scleroderma (Italy) In the exams her illness appears to be halted, but about a month ago she started having stomach problems…

Sara: Surviving Daughter of Scleroderma Patient This is the story of my mother who died on March 18, 1996, from complications of scleroderma…

Sarah B: CREST Scleroderma I lost the tips of my baby finger and thumb. The other three fingers do not look too pretty, either…

Sarah H: Linear Scleroderma When I was very young, two or three years old, my mom started to notice that the top of my scalp was changing…

SariHope: CREST Scleroderma and Sjogren's Syndrome During the first few years after being diagnosed with Raynaud's, I had to go to the grocery store with gloves on to reach into the frozen freezer…

Sbirulino: Limited Systemic Sclerosis, First Stage Biliary Cirrhosis (Italy) They diagnosed Raynaud's Syndrome, until there was amputation of the first and second phalanges, which caused total invalidism…

S. Davenport: Surviving Daughter My father died from cryptogenic fibrosing alveolitis and for the last two years of his life he suffered very badly with this disease…

Sara P: CREST Syndrome In the winter of 1997, my fingers and toes started turning white and numb in response to the cold weather…

Scott: Friend of Patient with CREST One of her first doctors said she had five years to live. Why would he say such a thing? I have read story after story of people having CREST for decades…

Seema: Progressive Systemic Sclerosis (India) My real woes started in January 2002. I developed severe arthritis. My fingers got swollen and my knee joints became inflamed…

Serena: MCTD/Diffuse with CREST During her 20 years from onset to diagnosis, her Calcinosis was diagnosed as fungus…

Shar: Lupus, Scleroderma, Sjögren's, and Fibromyalgia Was my battle with Hepatitis C worth it? Yes!

Sharon: CREST with Limited Scleroderma, Sjögren's and Pulmonary Hypertension (Australia) Day by day I discover another food I cannot eat…

Sharon H: Scleroderma/Morphea It has been thirty-two years living with this and it has progressively gotten much worse and has spread…

ShaunTel: Scleroderma/CREST Since 1993, I have had doctors telling me so many different diagnoses that I believed I was really just making it up…

Shaz: Mother of Son with Morphea My seven-year-old son has had morphea since he was five years old and has just been diagnosed with localized scleroderma…

Sheena: Systemic Sclerosis with Watermelon Stomach None of my doctors could understand how all my other complaints went with the watermelon stomach, but I knew they did…

Sheila: CREST with Limited Scleroderma I felt really scared, confused, and dehumanized in the process of my diagnosis…

Sheila Z: Scleroderma I would like to first say that this site has been a great help for me to understand what is happening to my body and my life…

Shelby: Morphea Scleroderma I was diagnosed with morphea scleroderma the day of the September eleventh terrorist attacks…

Sherrell: Possible Scleroderma When he examined me, he mentioned the possibility that I may have scleroderma. He said my fingers and face showed signs of this disease…

Sherrill: Diffuse Systemic Scleroderma (New Zealand) I could no longer walk, due to knee contractures. My hands resembled claws. I had elbow contractures and neck contractures, and could not straighten my arms…

Sherrill: My Experience with Anemia Since I became ill with diffuse scleroderma just over eight years ago, I have found that anemia is a quite complex subject…

Sherry: Fibromyalgia, Hypothyroidism and Raynaud's He said Fibromyalgia is just pain, and if I could not handle my job, I should quit…

Sheryl: Morphea The brown spots have spread all over my body including my face…

Shirley: Progressive Systemic Sclerosis Difficulty swallowing was the thing which got my doctor's attention…

Shirley S: Surviving Spouse of Scleroderma and Lupus Patient My husband John had scleroderma, and he passed away on November 8, 2001…

Shirley Wright: Limited Scleroderma I have had this disease for over twenty years now and I plan on being around a lot longer…

Sibel: Scleroderma and Raynaud's (Turkey) Changes in my skin were making me look different in the mirror…

Silezia: Mixed Connective Tissue Disease (South Africa) I believe that if we try to feel positive about our life and the cards we are dealt, then we can manage our disease most effectively…

Silvia: Mother of Son with Morphea He went to a dermatologist and got a biopsy done. His diagnosis was "Late stage of Morphea"…

Silvy: Sister of Scleroderma Patient (Italy) My sister was the most beautiful girl in our little village in Sicily. Now her skin is like wood, her mouth so little, and her hands, you can't look at them without an escape to cry…

Simo S: Raynaud's (Italy) Hello, I am a twenty-nine-year-old girl who was diagnosed with Raynaud's about ten years ago…

Sissy: Spouse of Progressive Systemic Scleroderma Patient His skin is hard all over, his fingers are frozen almost closed, his legs are bent at the knees and hips and he cannot finish a can of soda because his head no longer flexes enough to drain the can…

Skye: Localized Juvenile Scleroderma After weeks of complaining to my parents that my foot looked larger and was discolored my mom noticed it being bigger and discolored so she called my dad at work and told him…

Sofia: Systemic Scleroderma I gave interviews in Argentinean television so that those who suffer from it do not lose hope…

Soledad: Diffuse Scleroderma with CREST I have tried to find different therapies and sometimes I feel fine, but then I have a crisis, I fall, pick myself up again, time and time again…

Sonya: Daughter-in-Law of Diffuse Scleroderma Patient I think that we all need to give her permission to die. I believe CB is hanging on for everyone else…

Sonya D: Surviving Daughter of Systemic Scleroderma Patient (Portugal) She had difficulty eating, drinking and digesting her food, but yet doctors had no clue…

Soose: Limited Scleroderma I may have had scleroderma for the last year and a half or two years and did not know it…

Sorin: Cousin of Undiagnosed Patient I live in Romania and I have a cousin who has symptoms…

Sparky: Diffuse Scleroderma My pulmonary disease worsened only slightly over the past year. I now face the decision to take cytoxan…

Stacie: Linear Scleroderma I may have been incurable at four years old but it gave me an insight. I appreciate my life so much more than I would have thought. It could be worse…

Stacy M: Scleroderma and Lupus I am only a thirty-three-year-old male and I feel like I am eighty years old…

Star: Widow of Scleroderma Patient I am 43 and I lost my husband on October 7, 2001…

Star S: Morphea and Systemic Scleroderma I was diagnosed with morphea at age seven. Now at age thirty-three, I have recently developed systemic scleroderma with gastrointestinal manifestations, Sjogren's syndrome, inflammatory arthritis, malabsorption…

Stefan: Progressive Systemic Sclerosis I have been moving towards this diagnosis beginning in 1987 with a heart failure resulting from cardimyopathy…

Stephanie: Morphea Scleroderma I have bruise-like patches all over the trunk of my body…

Stephanie D: Scleroderma/Heparin-Induced Thrombocytopenia If I receive heparin again I will certainly die…

Stephanie L: Morphea I have also had numbness in my arms, legs and face for the past two months. The doctors do not believe they are related to each other, but it does seem strange that it happened within the same year…

Steve D: Diffuse Scleroderma (England) My symptoms started in 1993, when I noticed my fingers would start to get cold even though it was summer and the temperatures were mild…

Sue: Surviving Sister of a Scleroderma Patient It was December 1990 when the phone rang at my apartment early in the morning…

Sue Ann: Mother of Son with Scleredema Scleredema is an illness similar to scleroderma. It is also known as Scleredema Adultorum, Scleredema Adultorum of Buschke, Scleredema Diabeticorum, and Scleredema Diabeticorum of Buschke..

Sue D: Diffuse Scleroderma Pain developed in my hands, then I noticed pain in my knees, then my shoulders, down my back, elbows, hips, feet…

Sue M: Morphea Scleroderma At present, I have blemishes on my face, chest, hips, feet and arms…

Sue R: Hereditary Hemorrhagic Telangiectasia (HHT) HHT is a blood vessel disorder. I have spontaneous nosebleeds on a daily basis. It has been corrected in the past. I had dermal septoplasty surgery…

Sue "SASA": Morphea Scleroderma I am a thirty-eight-year-old woman living in South Australia, where there is a high incidence of morphea…

Sue W: UCTD with Neurological and Musculoskeletal Involvement Prior to this unique onset of symptoms I worked as a nurse and I was a very independent, self-sufficient single parent…

Sujatha: Diffuse Systemic Sclerosis (Bangalore, India) I am 36 years old and hail from Bangalore in the Southern State of Karnataka in India…

Susan H: Eosinophilic Fasciitis While I was in the hospital and starting dialysis, my right arm became hard as a rock and swollen…

Susan L: Diffuse Scleroderma I first noticed the swelling in my hands and feet shortly after my daughter was born in 2005, and thought that it was post-pregnancy fluid…

Susan M: CREST, Raynaud's and Hashimoto's (Canada) I have a fabulous doctor now and she has brought me from a very dark place to one where I can again see the sunshine…

Susan Raby-Dunne: Surviving Daughter of Scleroderma Patient My mother lived a fairly full and productive life for over thirty years after her diagnosis. She danced with my father and they were accomplished ballroom dancers…

Susie: CREST Syndrome I have had CREST syndrome for the past eight years. My specialist is Dr. Frederick Wigley, from Johns Hopkins…

Susie L: Raynaud's (and Scleroderma, too?) I have been told that I "probably" have scleroderma in the early stages by one doctor, that it is unlikely by another, and that I almost certainly do have it by yet another…

Suzy G: GAVE (Watermelon Stomach) and Primary Biliary Cirrhosis Just over six years ago I was diagnosed with primary biliary cirrhosis (PBC), a liver disease. Since then everything else seems to be happening to my body…

Suzy H: Mother of Daughter with Morphea She is twelve now, and although it has not gotten worse, it does not seem to be getting any better…

Swede: UCTD or Hypochondria I have been experiencing severe pain in my feet and ankles for the last two years…

Syl: Systemic Scleroderma/CREST/Pulmonary Hypertension/Sjögren's The physician's assistant noticed that my hands went really blue…

Sylvia: Surviving Mother of Scleroderma Patient She had this disease from 2001 without the doctors realizing it…

(English) by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z

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