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Santolupo: Diffuse Scleroderma

Italy

Vegetable Art by Shelley EnszMy mother has suffered from this illness for nine years. As a cure she takes Flebo once a month, but we have seen so many doctors, there are some who say that she has Raynaud's Syndrome, but where we she is under treatment they say it is systemic scleroderma and that she should get this treatment.

In the exams her illness appears to be halted, but about a month ago she started having stomach problems. We don't understand anything anymore, everyone has been affected, and we are not calm anymore. If anybody knows where I could find a centre for this illness, please let me know, anything at all, please help me.

Thank you.

To Contact the Author

Santolupo
New email address needed 08-06-09 SLE
Old Email Prefix: antonmelchiorre
Story edited 03-20-09 JTD
Story posted 03-26-09 SLE

Story Artist: Shelley Ensz
Story Translator: Alba León
Story Editor: Judith Thompson Devlin

LINKS
Italian:
Santolupo: Sclerodermia Diffusa
Sclerodermia Diffusa
Fenomeno di Raynaud

English:
Caregiver Resources
Caregiver Stories
Diffuse Scleroderma
Diffuse Scleroderma Stories
Gastrointestinal Involvement
Raynaud's
Raynaud's Stories
Medical: Diseases and Symptoms
Scleroderma Experts (Worldwide)
Sclero Forums
Symptoms of Systemic Scleroderma
Types of Scleroderma
What is Scleroderma?

ISN Translator and Editor: Alba León

Alba LeonAlba León is the ISN Translator for this page. She is studying international relations in Mexico City.

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

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