Patient & Caregiver Stories Main Menu

(English) by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z

By Language: French   German   Greek   Italian   Polish   Romanian   Russian   Spanish   Turkish

By Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms

Sheryl: Morphea

I have white spots on my chest now and my skin is very leathery.

Sunrise Rose for Sheryl by Sherrill Knaggs, ISN Artist My story starts several years ago when I was going to numerous doctors for joint pain such as wrist, TMJ, knees. On one of my visits to my physician I showed her the small brown spots I had on my upper right thigh. She biopsied it and referred me to a skin doctor. He asked me if I was having joint pain also. When I confirmed that I was he put me on an antibiotic because he said it might be related to Lyme disease.

I was on the antibiotics for several months. All of my joint pain went away, but in the meantime I was having side effects from the antibiotics and my spots were increasing down both of my legs.

During my time in his care he did two more biopsies on my legs and told me the only thing they knew to do was to put me in a machine sort of like a tanning bed except stronger. The spots would then turn white and hard. I already have a few spots like that and they hurt at times so I opted out of that treatment.

Since there was nothing else they could do I have not been back in to see them. The brown spots have spread all over my body including my face. I have white spots on my chest now and my skin is very leathery. My skin also hurts during the cold winter so I keep a lot of lotion on it. I do not have joint pain anymore except when I have been standing for a long period of time.

I really had not associated morphea with that but it makes sense now. I was told to not get in hot water which is my favorite for a shower so I do try to limit the hot water.

Although, I hate that others are suffering with this terrible disease, I am glad to know I am not alone. If you know of anything to help my skin not hurt or ache please forward to me.

To Contact the Author

[email protected] kirklandsa
Story edited 08-18-06 JTD
Story posted 10-12-06 SLE

ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Thompson Devlin
Morphea Stories
Types of Scleroderma
What is Scleroderma?

ISN Artist: Sherrill Knaggs (In Loving Memory)

Sherrill KnaggsSherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

Go to Shirley: Progressive Systemic Sclerosis
Most Recent Donors

Winn Schillberg
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!

In Loving Memory

Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.


SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA

Email [email protected] to request our Welcome email, or to report bad links or to update this page content.

TOLL FREE HOTLINE 800-564-7099
Free to U.S. and Canadian Callers. Ask for our Free Info Packet by mail or email!
Scleroderma, Pulmonary Arterial Hypertension, and related illnesses.
Privacy Policy.

The most important thing in the world to know about scleroderma is!
Donate Now
Copyright 1998-2016, International Scleroderma Network. AKA Scleroderma from A to Z and SCLERO.ORG. All Rights Reserved.