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Soledad: Diffuse Scleroderma with CREST

I am having a hard time understanding my illness, and its symptoms.

Two Red Flowers by Shelley EnszI was diagnosed with scleroderma three years ago. I am having a hard time understanding my illness, and its symptoms. I am in a stage of exploration and self-discovery. I have tried to find different therapies and sometimes I feel fine, but then I have a crisis, I fall, pick myself up again, time and time again.

I am thirty-four, with two children, one is seventeen and the other eleven. I have a lot to fight for, I am mother and father to them.

I would like to find someone to talk to, that understands what is happening to me without pitying me, because that's what I see in people's eyes, pity, perhaps sometimes I even see it in myself.

Cheers and good luck.

To Contact the Author

Soledad
Email: csoledad [email protected]
Story edited 06-13-2010 JTD
Story posted 07-01-2010 SLE

Story Artist: Shelley Ensz
Story Translator: Alba León
Story Editor: Judith Thompson Devlin
LINKS
Español/Spanish:
(Español/Spanish) Soledad: Paciente con Esclerodermia Difusa con CREST
Acerca de la Esclerodermia

English:
CREST Syndrome
CREST Syndrome Stories
Diffuse Scleroderma
Diffuse Scleroderma Stories
Emotional Adjustment: Coping
Emotional Adjustment Stories
Medical: Diseases and Symptoms
Scleroderma Experts (Worldwide)
Sclero Forums
Symptoms of Systemic Scleroderma
Types of Scleroderma
What is Scleroderma?

ISN Translator and Editor: Alba León

Alba LeonAlba León is the ISN Translator for this page. She is studying international relations in Mexico City.

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

Go to Sonya: Daughter-in-Law of Diffuse Scleroderma Patient
 
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