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Stephanie: Morphea Scleroderma

I think it is affecting my joints.

Flowers for Stephanie by Shelley Ensz In the year 2000, I finally received a diagnosis of localized morphea scleroderma.

I have bruise-like patches all over the trunk of my body. The spots grow under my breast, on my side, stomach, back, and part of my arm. It has confined itself to the left side of my body.

My doctor, at the time, told me not to worry, but at the same time said there is no cure. I think it is affecting my joints. I feel like I have arthritis at twenty five years old.

To Contact the Author

New email address needed 08-06-09 SLE
Old Email Prefix: Sgoens312
Story posted 10-28-01
Story edited VH1: JTD 9-8-03

Story Artist: Shelley Ensz
Story Editor V1: Judith Devlin
Morphea Scleroderma
Voices of Scleroderma Volume 1

This Story is Featured in Voices of Scleroderma Volume 1

Voices of Scleroderma Volume 1 The story on this page is featured in the top-notch Voices of Scleroderma Volume 1 which features articles by top scleroderma experts, including Dr. Joseph Korn, as well as 100 true patient and caregiver stories from this website! The book delivers excellent information and support for scleroderma patients and caregivers. It's a great way to inform family and friends about scleroderma, too!

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

Go to Stephanie D: Scleroderma/Heparin-Induced Thrombocytopenia
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In Loving Memory

Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.


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