Just over six years ago I was diagnosed with primary biliary cirrhosis (PBC), a liver disease. Since then everything else seems to be happening to my body.
Gastric Antral Vascular Ectasia (GAVE, which is also known as Watermelon Stomach) was diagnosed about three years ago and after numerous iron infusions it was decided that they would operate and stem the bleeding in my stomach. That was yesterday and today I feel so weak and tired. My top left side of my stomach is so, so sore. It hurts to bend down. Looks like we will repeat surgery in three to six months.
I would love to hear from anyone with similar problems.
Email: [email protected]
Story edited 01-31-09 JTD
Story posted 03-03-09 SLE
Story Artist: Shelley Ensz
Story Editor: Judith Thompson Devlin
Liver Involvement Stories
Watermelon Stomach Stories
Medical: Diseases and Symptoms
Scleroderma Experts (Worldwide)
Sclero Forums *Online Support Group!*
Symptoms of Systemic Scleroderma
Types of Scleroderma
What is Scleroderma?
United Way of Central New Mexico
United Way of Snohomish County
See ISN News for recent donors, including Juliet Youkhana; and donations in loving memory of Jim Miller and Arlene Marie Petulla.
Click Here to Donate or Shop
or click on the floating green DONATE sclero.org button.
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to: