My name is Tara. I was diagnosed with scleroderma in January 2000, but I have had it since April 1997. It only became worse in the new year.
I have shiny patches on my arms and stomach. My skin is tight all over. My hands are the worst; for two years I was unable to write, now I can write a little.
I have disfigured fingers. My fingers have open sores and hurt all the time. They swell up and change colors in cool weather.
I lost weight. It takes me one month to put on one pound. I do not always eat good because food does not always go down. Food gets stuck in my throat. I have to rub my neck as the food goes down, so it does not stick. Then I sometimes have choking spasms when I can't breathe.
I am tired all the time. I take vitamins for extra energy, which helps. I am limited in everything I do. Through all of this, God has given me the grace to make it and live. I am not sure what kind of scleroderma I have, because my organs are affected and my skin is tight plus my hair fell out and my hands hurt.
If someone can please help me, I would be grateful. The doctors I see do not know what to do, and none of the medicine works. So help me please, if you can.
(Tara, I have been trying to reach you. Please send me your current email address. Shelley)
Story posted 11-28-00
Story Artist: Shelley Ensz
Types of Scleroderma
Dysphagia (Difficulty Swallowing)
Raynaud's (cold hands)
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!
Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.
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