After two weeks, noticed a spot, as if someone had hit me in the back, behind the arm, and then another one in my thighs followed. I thought at first that during surgery, when I was sedated, somebody had hit me, since I have very sensitive white skin. However the marks do not disappear.
The doctor has prescribed a cream and some pills that had really adverse effects. Finally they sent me on to a laser treatment. The doctor says that he will not give me the results of my biopsy, but I feel worse every day.
I live in Puerto Rico and it seems that the illness is not known over here. Thank you for helping me out and reading about my problem.
After many tests and biopsies they have diagnosed me with Morphea. I am currently in laser therapy and I need some injections, but they are very painful, some days the pain in my arms is so unbearable that I cannot get out of bed. I am a very optimistic person and I have faith in my God, I know he will not give me more than I can take. I just hope I do not get any other spots and that I am able to overcome the illness with medicine.
Email: [email protected]
Story edited 10-30-09 JTD
Story posted 04-23-10 SLE
Update edited 04-26-10 JTD
Update posted 04-28-10 SLE
Story Artist: Shelley Ensz
Story Translator: Alba León
Story Editor: Judith Thompson Devlin
Alba León is the ISN Translator for this page. She is studying international relations in Mexico City.
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!
Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
Email [email protected] to request our Welcome email, or to report bad links or to update this page content.