SCLERO.ORG
Search
Patient & Caregiver Stories Main Menu

(English) by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z

By Language: French   German   Greek   Italian   Polish   Romanian   Russian   Spanish   Turkish

By Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms

Toni H: Morphea

“I still do not know anything about the disease.”

Cactus Flowers by Sherrill Knaggs, ISN Artist Hi. I am in the process of discovering what scleroderma is all about.

I was diagnosed as a child with a strange skin complaint, but was given no information about it. My mother does not remember what she was told either so she has been of no help.

Then about two years ago I discovered more patches on my skin that seemed to be spreading. The skin specialist I saw gave it the name scleroderma or morphea. The treatment is cortisone cream applied twice daily. But I still do not know anything about the disease.

I am in my early forties, have eight children, and want to learn what I can about morphea. This is why I am sharing my story.

To Contact the Author

Toni
New email address needed 01-20-05 SLE
Old Email Prefix: hailstone
Story posted 10-4-02
Story posted 10-9-02
Story edited 7-25-03 SLE

ISN Senior Artist: Sherrill Knaggs
Story Editor: Saba Sadiq
LINKS
Cortisone
Morphea
Scleroderma

PDF Brochure: What is Scleroderma?

ISN Artist: Sherrill Knaggs (In Loving Memory)

Sherrill KnaggsSherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.

ISN Story Editor: Saba Sadiq

Saba SadiqSaba Sadiq is the ISN Story Editor for this story.

Go to Tonya: Morphea Scleroderma
 
United Way of Central New Mexico
United Way of Snohomish County
See ISN News for recent donors, including memorials for
Jim Miller, Arlene Marie Petulla, Frances Maude Baldwin Watson and Rubye Mai Blocker Westmoreland.
Thanks to Winn Schillberg for donating to scleroderma research.
Donate or Shop Now
 

TOLL FREE HOTLINE, U.S. and Canada: 1-800-564-7099
Ask for our Free Info Packet by email or postal mail!

SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
Email [email protected] to request our Welcome email, or to report bad links or to update this page content. Privacy Policy.
 

The most important thing in the world to know about scleroderma is sclero.org!

Donate Now
Copyright 1998-2017, International Scleroderma Network. AKA Scleroderma from A to Z and SCLERO.ORG. All Rights Reserved.