I have been experiencing extreme sensitivity to the cold. My fingers and toes turn white and become completely numb. I have seen a doctor, and he has run two antinuclear antibody (ANA) tests. They were both positive.
My problem is, my doctor is not telling me anything. He wants to wait another six months to test my ANA again. I do not know if the wait and see approach is the best way to handle this. Should I find a specialist, or wait for a diagnosis?
I would really appreciate hearing from somebody who has been diagnosed. Not only would I like to hear how the diagnosis came about, but also what the chances are that I have scleroderma if at all possible. My only other symptoms are fatigue and a little joint stiffness in my fingers.
Please share your story with me. I am really tired of waiting and wondering. Thank you very much.
New email address needed 7-13-03 SLE
Old Email Prefix: tjak4
Posted 11-19-00 SLE
Story edited 7-13-03 SLE
Story Artist: Shelley Ensz
ANA Antibody Tests
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!
Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
Email [email protected] to request our Welcome email, or to report bad links or to update this page content.