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By Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms

Stories in English: V

Val: Systemic Scleroderma I am afraid to find out too much about the disease because I do not want it, but I do wonder what is going to happen to me next…

Valeria: Systemic Sclerosis (Italy) I am a 21-year-old woman, and at the age of nine I was diagnosed with systemic sclerosis…

Valerie: Mother of Morphea Patient We noticed that our son was developing a purplish "rash" on his left leg when he was about four years old…

Vali: Mother of Linear Scleroderma Patient (Italy) A dermatologist diagnosed her with Linear Scleroderma, but another one said it was Linear Lichen Planus. My daughter's feet, when she walks, turn inside, and she is often warm, but doesn't have a fever…

Vanessa: Linear Scleroderma My older sister found a way to cover up the nasty disease on my forehead. Bangs! It was a great idea…

Veronica: Sjögren's Syndrome (Italy) I am a 30-year-old woman and I have been suffering for three years from Sjögren's Syndrome with highly positive anti-SSA antibodies…

Vivi: Facial Scleroderma (Linear/Morphea or Parry Romberg's) I feel really bad, I want to get better, I want to be pretty, I am hurt when I see my cousins healthy and pretty and I can't stop covering my face because I am ashamed…

Stories in English: W-X

Wade: Scleredema vs Scleroderma At first look, my doctor thought I might have scleroderma, but after doing blood work, they said my tests came back negative…

Walter: Father of Scleroderma Patient In November he received his diagnosis of scleroderma.He is the best son a father could ever hope to have…

Weesie: Crest/Raynaud's I have come to feel that I am am easy pickings for the majority of physicians since they know that there is no cure…

Wendy: Morphea My diagnosis was back when I was in junior high school…

Wendy B: Mother of Daughter with Morphea and Vitiligo Does anyone else have Morphea and vitiligo? And what is the outcome?

Wendy L: CREST Syndrome In 1987 I was diagnosed with Non-Hodgkin's Lymphoma. I received highly toxic chemotherapy, and at a later date radiotherapy…

Wes C.: Brother of Systemic Sclerosis Patient Just days ago, my sister Michelle was diagnosed with systemic sclerosis, after being misdiagnosed for almost two years…

William M: Scleroderma or Lupus I had to give up my career of being a registered nurse (RN) over two years ago due to total disability…

Stories in English: Y

Yally: Dermatitis with Linear/Morphea My daughter has a spot on her left leg, that almost covers it completely…

Yolima: Diffuse Scleroderma I was misdiagnosed for more than a year with so many diseases and given all Types of medication for different problems except for the real disease…

Yvette: Undifferentiated Connective Tissue Disease (UCTD) and Thyroid Cancer For now, I have accepted that the diagnosis of my core problem is not important. The way I choose to deal with it is…

Yvonne Frasure: CREST and Fibromyalgia I no longer go to the doctor because I simply cannot afford it. I cannot get insurance so everything is out of pocket…

Yuri: CREST Syndrome Now, one month before my nineteenth birthday, I live with CREST Syndrome, rheumatoid arthritis, acid reflux and anemia…

Stories in English: Z

Zuly: Morphea I would like to help people who suffer from it and get to know others with the same illness…

(English) by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z

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