I am a thirty-year-old woman, and I have been suffering for three years from Sjogren's Syndrome with highly positive anti-SSA antibodies. I am being treated with cortisone, and about a year ago a monoclonal immunoglobulin peak appeared in my blood. I continue to take the same cortisone treatment although recently, after a stressful episode, my symptoms worsened, with pain in my right parotid gland. This resolved after the dose of steroid was increased.
I am very worried about my condition. I am a member of our local association, but this has not been a great help. I would like to get in contact with other colleagues (in fact, I am a doctor) who could help me and, above all, share with me their experiences.
I would also like to have information about the possibility of getting pregnant, and about the likelihood of developing a malignancy.
Email: [email protected]
Story posted 1-30-02
Story edited 3-30-02
Story translation by Kevin Howell posted 6-18-02
Story edited VH1: JTD 9-9-03
Story Artist: Shelley Ensz
Story Editor V1: Judith Devlin
Pregnancy and Scleroderma
(Italiano) Veronica: La Sindrome di Sjögren
(Italiano) Sclerodermia dalla A alla Z
(Italiano) La Sindrome di Sjogren
(English) Sjögren's Syndrome
Voices of Scleroderma Volume 1
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Kevin Howell is the ISN Translator (Italian to English) for this story. He is a Clinical Scientist for Professor Black at the Royal Free Hospital in London.
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