SCLERO.ORG
Search
Patient & Caregiver Stories Main Menu

(English) by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z

By Language: French   German   Greek   Italian   Polish   Romanian   Russian   Spanish   Turkish

By Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms

Weesie: CREST Scleroderma

More emphasis should be put on finding a cure for this disease.

Mary's Fruit Bowl by Shelley Ensz I have been diagnosed with scleroderma which condition I have been treating with various medications and numerous physicians.

I have come to feel that I am am easy pickings for the majority of physicians since they know that there is no cure. Other than the experimental drugs, it is been more or less a quick fix in order to relieve the pain and give some relief.

The entire doctors scene has been very discouraging for me over the years. More emphasis should be put on finding a cure for this disease in a manner such as the Jerry Lewis Telethon.

To Contact the Author

Weesie
New email address needed 7-13-03 SLE
Old Email Prefix: rscace
Story posted 2-18-99
Story edited 7-13-03 SLE

Story Artist: Shelley Ensz
LINKS
Clinical Trials
CREST Scleroderma
Raynaud's
Go to Wendy: Morphea
 
Recent Donors
See ISN News for recent donors, including memorials for
Christine Kane, Joleen M. Cascaden.
 

SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA

Email [email protected] to request our Welcome email, or to report bad links or to update this page content.

TOLL FREE HOTLINE 800-564-7099
Free to U.S. and Canadian Callers. Ask for our Free Info Packet by mail or email!
Scleroderma, Pulmonary Arterial Hypertension, and related illnesses.
Privacy Policy.

 
The most important thing in the world to know about scleroderma is sclero.org!
Donate Now
Copyright 1998-2017, International Scleroderma Network. AKA Scleroderma from A to Z and SCLERO.ORG. All Rights Reserved.