Hello, my name is Zullimy, but people call me Zuly. I am twenty-four years old. About one year ago I got a spot on my nose that turned deep purple. I visited several dermatologists and they all told me there was nothing to worry about.
Then I noticed another spot turned up in my forehead and I visited another dermatologist, in the capital (I live in a province). He diagnosed me with scleroderma and I have been taking meticorten. Thank God it hasn't gone to other parts of my body.
I want to visit a specialist in Mexico or Cuba. Please, if you know of someone, contact me.
I want to tell everyone that we have to keep our faith in God, we are going to be okay and healthy. I get desperate sometimes, although thank God I have been feeling fine.
However, I know so little of this illness, I had never heard about it. I would like to help people who suffer from it and get to know others with the same illness.
I am grateful for my wonderful family and great boyfriend who supports me and I want to tell everyone who suffers from scleroderma, this strange disease, that God created us healthy and we will be healthy. Let us keep strong in our faith, it doesn't matter which religion, and we will make it through. Let's enjoy life, because it is wonderful, and these things make us value it more.
I hope someone writes back to me, I am here to help you out in any way I can and if you could recommend a doctor I would me most grateful. Keep your faith and god bless.
Email: [email protected]
Story edited 05-26-06 JTD
Story posted 09-25-06 SLE
ISN Senior Artist: Sherrill Knaggs
Story Translator: Alba León
Story Editor: Judith Thompson Devlin
(Español) Zuly: Morfea
(English) Morphea Stories
(English) What is Scleroderma?
(English) Types of Scleroderma
Alba León is the ISN Translator for this page. She is studying international relations in Mexico City.
Reading Voices of Scleroderma Books: Diana Kramer.
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