Birdman: Roger and Julie Ford, Caring Bridge. Roger passed away on 9-21-09, after having had his stem cell transplant for scleroderma.
Blog: Jackie Sue We Love You. Jackie passed away on November 30th, 2011. Jackie had GVHD. The blog covered her progress after her mini-allo MUD transplant. Her transplant was the first one to be performed by the Mayo Clinic. Bruce and Jackie. (Also see Graft vs. Host Disease, GVHD)
Blog: Living With Hope. I have scleroderma, avascular necrosis, cervical spinal disc disease, pulmonary fibrosis, pulmonary aterial hypertension, and several other things that go with these diseases. I was diagnosed in 1991. I am 56. Brian, my husband was diagnosed three years ago with early onset Alzheimer's. He is 57. Dee Dee Hunt.
Denelle's Journal. A journal of Denelle's experience at Northwestern during her stem cell transplant.
Kealy's Journey with Linear Scleroderma from Mom's Perspective. Terry Bullard.
Listen and Laugh. A humorous blog from a senior citizen with scleroderma. Natasha Lubin.
Sharon's Stem Cell Transplant Blog, "Spreading our wings in Windy City". Sharon and Craig.
Please see Scleroderma Sites to Surf! for more Scleroderma stories.
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to: