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Scleroderma Story Collections

SCLERO.ORG Stories. Over 1,000 patient, caregiver and survivor stories from around the world, including stories in many languages, including French, Italian, Romanian, and Spanish. Read our Stories. Stories on other web sites include:

Birdman: Roger and Julie Ford, Caring Bridge. Roger passed away on 9-21-09, after having had his stem cell transplant for scleroderma.

Blog: Jackie Sue We Love You. Jackie passed away on November 30th, 2011. Jackie had GVHD. The blog covered her progress after her mini-allo MUD transplant. Her transplant was the first one to be performed by the Mayo Clinic. Bruce and Jackie. (Also see Graft vs. Host Disease, GVHD)

Blog: Living With Hope. I have scleroderma, avascular necrosis, cervical spinal disc disease, pulmonary fibrosis, pulmonary aterial hypertension, and several other things that go with these diseases. I was diagnosed in 1991. I am 56. Brian, my husband was diagnosed three years ago with early onset Alzheimer's. He is 57. Dee Dee Hunt.

Denelle's Journal. A journal of Denelle's experience at Northwestern during her stem cell transplant.

Kealy's Journey with Linear Scleroderma from Mom's Perspective. Terry Bullard.

Living with Sclero. My life with juvenile scleroderma, in Finland. Epasen (Emmi).

Listen and Laugh. A humorous blog from a senior citizen with scleroderma. Natasha Lubin.

Sharon's Stem Cell Transplant Blog, "Spreading our wings in Windy City". Sharon and Craig.

Please see Scleroderma Sites to Surf! for more Scleroderma stories.

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Most Recent Donors

Winn Schillberg
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!

In Loving Memory

Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.

 

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