Sclerodactyly and Scleroderma
Sclerodactyly Personal Stories
Sclerodactyly is one of the hallmark or most well-recognized symptoms of systemic sclerosis.
Sclerodactyly is a tapering deformity of the bones of the fingers, defined by tight, stretched, wax like, hardened skin on the fingers and hands, causing the fingers to curl inwards, frozen in a clawed position, the sclerodactyly hallmark. Underlying soft tissues can atrophy and depending on severity, sclerodactyly can cause disability.
In scleroderma, sclerodactyly onsets with puffiness (swelling, edema) of the fingers or toes, and only rarely advances to the clawed condition described above.
Sclerodactyly is commonly associated with wasting (atrophy) of the underlying soft tissues. (Also see Overview of Skin Involvement, What is Scleroderma?, Types of Scleroderma) and Overview of Skin Involvement)
Scleroderma Images. ISN Photo Repository.
Systemic scleroderma often affects the hands. The initial stage is swelling (edema), which can last for weeks, months, or years. Often the swelling is intermittent and worse in the morning. It can cause the fingers to look like sausages, with far fewer wrinkles. Skin tightness in the hands can make it impossible to pinch the skin on the fingers.
In some people, the fingers eventually begin to harden from fibrosis, and curl inward. They may then become frozen in this clawed position, which is referred to as "sclerodactyly."
Sclerodactyly begins with swollen fingers and/or toes, which are often so swollen that it becomes difficult to bend them. This phase is then sometimes followed by skin thickening, and then skin hardening. It can eventually lead to hands that are stiffened into a claw, and immovable. ISN.
|Overview of Treatments
Physical and Occupational Therapy
Betty Fults: CREST Scleroderma I would like to talk with someone that has feeding tubes also. Maybe that will help me…
Beverly: CREST Scleroderma I was overtired and needed naps in the afternoon, pain was slowly getting the better of me and I finally went to the doctor…
Bill: Diffuse Scleroderma I was relieved to have a label for my condition but the doctor was not very reassuring telling me that there was no effective cure or treatment…
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!
Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
Email [email protected] to request our Welcome email, or to report bad links or to update this page content.