Juvenile Scleroderma Prognosis

Author: Shelley Ensz. Scleroderma is highly variable. See Types of Scleroderma. Read Disclaimer
Prognosis: Localized (Linear/Morphea)
Prognosis: Systemic (Diffuse/Limited)


When any form of scleroderma (either localized or systemic) occurs in children, it is also called Childhood Scleroderma or Juvenile Scleroderma. (Also see What is Scleroderma? and Types of Scleroderma)

Prognosis: Juvenile Localized Scleroderma (Linear and Morphea)

Localized scleroderma, such as linear, morphea, en coup de sabre, may cause disfigurement and disability (which is why it is important to seek expert care early on). However, localized scleroderma does not reduce a person's life expectancy. (Also see Juvenile Scleroderma Experts)

Juvenile scleroderma: experience in one institution. While scleroderma is rare in children, the prognosis of systemic scleroderma (SSc) is poor but better than for adults. The prognosis for LS (localized scleroderma) is usually benign, however, the skin may become progressively indurated and it may not only be a skin disease. No progression from LS to SSc was observed in our study. Lo CY, Asian Pac J Allergy Immunol, 2010 Dec;28(4):279-86. (Also see Localized Scleroderma)

Prognosis: Juvenile Systemic Sclerosis (Diffuse, Limited/CREST)

Systemic sclerosis (scleroderma), such as diffuse or limited/CREST, can affect the skin, blood vessels, and internal organs. In general, the survival rate is better for those who have childhood onset of systemic scleroderma (as opposed to those with adult onset) because children tend to have less internal organ involvement. (Also see Juvenile Scleroderma Experts, Systemic Sclerosis, Systemic Sclerosis Prognosis, and Systemic Symptoms)

Mortality rates for pediatric rheumatology patients significantly lower than previously reported. A recent study by researchers from the Cleveland Clinic found that the overall mortality rate in the U.S. for all pediatric patients with rheumatic diseases was not worse than the age and sex-adjusted population. Furthermore, mortality rates were significantly lower than reported in previous studies of rheumatic diseases and conditions that are associated with increased mortality. E!ScienceNews. January 28, 2010.

Go to Localized: Linear Scleroderma
Most Recent Donors

Winn Schillberg
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!

In Loving Memory

Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.


SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA

Email [email protected] to request our Welcome email, or to report bad links or to update this page content.

TOLL FREE HOTLINE 800-564-7099
Free to U.S. and Canadian Callers. Ask for our Free Info Packet by mail or email!
Scleroderma, Pulmonary Arterial Hypertension, and related illnesses.
Privacy Policy.

The most important thing in the world to know about scleroderma is!
Donate Now
Copyright 1998-2016, International Scleroderma Network. AKA Scleroderma from A to Z and SCLERO.ORG. All Rights Reserved.