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En Coup de Sabre Patient and Caregiver Stories

Andrea H: Mother of Son with Facial Morphea I am the mother of a six-year-old boy called Alex who is suffering from facial scleroderma…

Audley: Mother of Linear Morphea (en coup de sabre) Patient After one diagnosis of Vitiligo, my motherly intuition told me that the diagnosis was not correct…

Bernarda: Mother of a Localized Morphea en Coup de Sabre Patient She still is not fully conscious of what is happening, while I am devastated…

(Español/Spanish) Bernarda: Morfea Localizada-Golpe de Sabre Fue un golpe tremendo para mí, ella aún no toma plena conciencia de lo que le pasa, yo estoy destrozada…

Bill B: En Coup de Sabre It is now getting near my eyebrow. I am a bit concerned it may begin to encroach on my eye and I am not sure what will happen…

Carlos: Linear Sclerodermia (En Coup de Sabre) I have been in treatment, but in my opinion I have not done much better, perhaps it is even worse…

(Español/Spanish) Carlos: Esclerodermia Lineal (En Coup de Sabre) Me he sometido a tratamientos y para mi apreciación sigo igual o peor…

Carmen: Linear Morphea, En Coup de Sabre I am an otherwise healthy, thirty-eight-year-old female, diagnosed with the en coup de sabre form of linear scleroderma…

Cedric: Linear Scleroderma, En Coup de Sabre (South Africa) I became aware of a small brown spot just above my right eye and gradually this patch became bigger and darker…

Dora: Linear Scleroderma I was diagnosed with linear scleroderma (en coup de sabre) in Romania 41 years ago…

Edith: MCTD with En Coup de Sabre/Parry Romberg's, Lichen Sclerosus, Rheumatoid Arthritis, Sjogren's My GP is fabulous, but at the end of the day it is not enough. I would be lost without people like you…

Ila: Localized Scleroderma En Coup de Sabre (Italy) It seems as if the illness has stopped, or to put it in a different way "calcified", like they told me in my last doctor's appointment…

(Italiano) Ila: Sclerodermia Localizzata a Colpo di Sciabola (Italia) Sembra che la mia malattia si sia fermata, o meglio "calcificata" come mi è stato riferito all'ultimo controllo…

Jane D: Linear Morphea (En Coup de Sabre) In August 2006, I found another dent in my head, but this one was deeper and longer and just to the left of the first one…

Joyce R: Scleroderma En Coup de Sabre When I was fifteen years old, somebody at school pointed out to me the fact that there was a white spot in the middle of my forehead, just below the hairline…

Kathy H: En Coup de Sabre Scleroderma When I was five years old I got a small black line in my forehead, a spot, like a mole, so my parents were not too worried about it…

(Español/Spanish) Kathy H: En Golpe de Sable A los cinco años me empezó a salir una línea negra en la frente, parecía mancha, como un lunar, así que mis padres no se preocuparon…

Kim K: Mother of Morphea Patient The dermatologist said they hoped this medicine would help the morphea stop growing. So far it is still growing. I am now worried that it is starting on her forehead…

Laura H: Mother of Son with Linear Morphea What started as a bruise in his forehead, has come down to his nose, and his forehead has sunk a bit…

(Español/Spanish) Laura H.: Morfea Lineal Al principio no le dí mucha importancia porque pasaba el tiempo y seguía igual, pero ahora pasado un año todo ha cambiado…

Linda E: Mother of En Coup de Sabre and Morphea Patient Five weeks later I noticed that the bruise was still there so we went to a pediatrician who referred us to a dermatologist…

Margot: Morphea, Linear and En Coup de Sabre I first went to a medical clinic when I noticed a small brownish mark on my stomach resulting in a doctor telling me I was wearing my jeans too tight!

Mary B: Scleroderma En Coup de Sabre I feel like it is tearing my head open. Sometimes I get headaches, and I believe it is because of this illness…

(Español/Spanish) Mary B: Esclerodermia en Golpe de Sabre Por el contrario siento que se me está haciendo una enorme brecha en la cabeza. A veces me dan dolores de cabeza y creo que es por causa de esta enfermedad…

Robin M: Daughter with Linear Scleroderma En Coup De Sabre While we have met with a pediatric plastic surgeon, my daughter has opted to not have any surgery at this time…

Teena: En Coup De Sabre My mother and I went to Johns Hopkins Hospital. They did what was called 'Grand Rounds' where about fifty doctors were looking at me taking pictures and videotaping me…

Tess: Scleroderma En Coup de Sabre I am thirty years old and I have just had reconstructive surgery for en coup de sabre, which is a form of linear scleroderma…

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