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Scleroderma Patient Stories

We feature the world's largest collection of scleroderma patient and caregiver stories, in many languages.

The stories from this site form the basis for the ISN's Voices of Scleroderma book series. (Also see What is Scleroderma? and Types of Scleroderma)

Systemic Scleroderma:

CREST Stories

Diffuse Stories

Limited SD Stories

Overlap Patient Stories

Localized Scleroderma:

Linear Stories

Morphea Stories

Morphea Stories (Italiano)

Others

English Stories by Type (Main listing)

English Stories Alphabetically by First Name

Stories in Other Languages

Difficult Diagnosis and Undiagnosed

Eosinophilic Fasciitis

Interstitial Cystitis

Sjögren's Syndrome

Go to Scleroderma Videos
 
Most Recent Donors

Winn Schillberg
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!

In Loving Memory

Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.

 

SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:

International Scleroderma Network (ISN)
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Edina, MN 55435-4702 USA

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