International Scleroderma Network
Skip to Page Content
Scleroderma from A to Z by the nonprofit International Scleroderma Network
The #1 scleroderma site with 2,000+ pages in 22 languages:
Arabic  Chinese  Deutsche/German  English  Español  Français  Greek  Hebrew  Hungarian  Indonesian  Italiano  Japanese  Kannada  Korean  Magyarul  Malaysian  Nederlands  Polski  Português  Romana  Russian  Spanish  Tamil  Turkish  Worldwide Lists
 
Earl's Running for SCLERO.ORG!
Sponsor Earl Manns in Green Bay Marathon, May 18, 2008! I'm running in honor of my daughter Mya, and in memory of Sherrill Knaggs. Join the excitement! (Also see: Donate Now, Earl Manns: ISN Fundraiser, and In Memory of Sherrill Knaggs)

International Scleroderma Network (ISN)
Stellar research, support, education and awareness for scleroderma and related illnesses.
Caregivers/Caregiver Stories
Coping, Depression, Pain, Sex
Disability Resources
Email Support
Gift Shop
Scleroderma Email Lists
Humor: Joke Lists and Games
Humor: World's First Virtual Pity Party!
Message Boards
Online Support
Personal Stories!
Phone Support
Photos of Scleroderma Symptoms
Scleroderma Sites to Surf!
Support Groups (Worldwide)
Survivor Stories: In Loving Memory
Scleroderma Webmaster's Assn
INFORMATION SUPPORT STORIES
ISN Memberships
Join the nonprofit ISN! Members receive our ISN Insider Newsletter with the latest medical and support information. Great for scleroderma patients and those who care for them. Join or Donate Now.
Coping
Coping, Depression, Pain, Sex.
Coping, depression, emotional adjustment, quality of life issues, pain, sex, and suicide.
Disability Resources
Our Disability Resources includes listings of free medication programs.
Volunteers
ISN Volunteers include a dynamic team of dozens of patients, caregivers, doctors, scientists, translators, artists, designers and writers. Read our profiles or submit your volunteer application!
For Support Groups
We network and empower other scleroderma groups in all countries with:
Free web pages
Free website listings
Free promotion of your special events
ISN Affiliates
Our first ISN affiliate community-based support group is the Asociación Colombiana de Esclerodermia led by Francisco Castellanos.
New ISN Affiliates
Do you want to start a new support group, or affiliate your existing group or organization with the ISN? It's easy! Just contact Shelley Ensz.
For Webmasters
Our Scleroderma Webmaster's Association offers Scleroderma Sites to Surf! It's free to join the SWA so enter your site or support group today.
English Online Support
We invite you to join our free and fabulous:
Sclero Forums
SCLERO FORUMS MESSAGES
How to Register, Login and Post
Español/Spanish Online Support
MSN grupo de esclerodermia. Esperamos desde este espacio proporcionar a sus participantes information, esperanza y ayudo. Francisco Castellanos.
Phone Support
Our toll-free number for people in the United States is 1-800-564-7099. You may also join, donate or purchase our books by phone.
Our direct number (at your expense) for people outside the U.S. is 1-952-831-3091. Be sure to let us know a good time to return your call.
Email Support
Email the ISN using our simple Site Inquiry Form or just email us with your question, concern or comments.
Gift Shop
Raise awareness of scleroderma and support our nonprofit agency while enjoying wonderful items from our ISN Gift Shop! A portion of each item goes to the nonprofit International Scleroderma Network (ISN) to help provide our full range of services, all throughout the world.
Humor
Humor: Joke Lists and Games
Everyone is invited to attend our
Virtual Pity Party!
Poems for Caregivers
Poetry for Caregivers: Husband, Wife,  Son, Daughter, Family, Parents by Sylvia Finegan.
ISN Book Series
ISN's Voices of Scleroderma book series features world experts plus inspiring personal stories!
Personal Stories
We have the world's largest collection of patient, caregiver and survivor stories for scleroderma and related illnesses! Browse by topic or by alphabetical listing.
New Personal Stories
Jaci: MCTD and Autoimmune Hepatitis Out of fear of going back to the doctors, I tried just to live with it, whatever it was. What I found strange was that nobody seemed to noticed how terrible I was feeling, not even the doctors...
Heather: Vitiligo, Hypothyroidism, and now Linear Morphea I am not too concerned about the other two conditions since there really is nothing you can do about the vitiligo, and the thyroid is under control. The morphea is what is bugging me...
Amanda: Diffuse Scleroderma Systemic Sclerosis I am thirty-nine years old and was diagnosed with diffuse scleroderma systemic sclerosis in August 2007...
More New Stories: April 2008
This is a great day to submit or update your story!
Submit Your Patient, Caregiver or Survivor Story in:
Arabic | Dutch | English | Español | Deutsche (German)
Italiano | Kannada | Polski | Russian | Spanish | Turkish | Other Languages
Share or Update Your Story!
We will edit your story, create original artwork to decorate it, prepare it for the web, and post it on this site. Just fill out our simple Story Submission Form for your story, updates, or email address changes.
Keep on Surfing!
Go to Caregivers/Caregiver Stories
Contact ISN
Email Postal Mail Phone
Inquiry Form (English) Mail-In Donation/Order Form Online Donation/Order Form
Inquiry Form (Spanish) Website: www.sclero.org Please contact us in English.
Email:
isn@sclero.org
webmaster@sclero.org

Or post a message in ISN's Sclero Forums for free well-moderated support and information, 24 hours a day!
International Scleroderma Network
7455 France Ave So #266
Edina, MN 55435
USA
Toll Free Hotline in U.S.
1-800-564-7099

Direct Line 1-952-831-3091
Arranging a Memorial, Fundraiser, Special Donation or P.R.?
We will make a custom donation form and link for you, and send thank you's and acknowledgement cards. We list donors and events in our website and newsletter. Please help raise awareness of scleroderma and related illnesses by mentioning the nonprofit International Scleroderma Network at sclero.org in conversations, speeches, web sites, and publications.
Thank you for helping us tackle scleroderma worldwide!
© Copyright 1998-2008 International Scleroderma Network
All Rights Reserved