| ISN
Memberships |
| Join
the nonprofit ISN! Members receive our ISN
Insider Newsletter with the latest medical
and support information. Great for scleroderma
patients and those who care for them. Join
or Donate Now. |
| Coping |
Coping,
Depression, Pain, Sex.
Coping, depression, emotional adjustment, quality
of life issues, pain, sex, and suicide. |
| Disability
Resources |
| Our Disability
Resources includes listings of free medication
programs. |
| Volunteers |
| ISN
Volunteers include a dynamic team of dozens
of patients, caregivers, doctors, scientists,
translators, artists, designers and writers. Read
our profiles or submit your volunteer application! |
| For
Support Groups |
| We network and empower
other scleroderma groups in all countries with: |
| • Free
web pages |
| • Free
website listings |
| • Free
promotion of your special events |
| ISN
Affiliates |
| Our first ISN affiliate
community-based support group is the Asociación
Colombiana de Esclerodermia led by Francisco
Castellanos. |
| New
ISN Affiliates |
| Do you want to start
a new support group, or affiliate your existing
group or organization with the ISN? It's easy!
Just contact
Shelley Ensz. |
| For
Webmasters |
| Our Scleroderma Webmaster's
Association offers Scleroderma
Sites to Surf! It's free to join the SWA so enter
your site or support group today. |
|
| English
Online Support |
|
| MSN grupo de esclerodermia. Esperamos desde este espacio proporcionar a sus participantes information, esperanza y ayudo. Francisco Castellanos. |
|
|
| ISN Book Series |
|
|
|
| Personal
Stories |
| We have the world's
largest collection of patient,
caregiver and survivor stories for scleroderma
and related illnesses! Browse by topic or
by alphabetical
listing. |
| Jaci: MCTD and Autoimmune Hepatitis Out of fear of going back to the doctors, I tried just to live with it, whatever it was. What I found strange was that nobody seemed to noticed how terrible I was feeling, not even the doctors... |
| Heather: Vitiligo, Hypothyroidism, and now Linear Morphea I am not too concerned about
the other two conditions since there really is nothing you can do about
the vitiligo, and the
thyroid is under control. The morphea is what is bugging me... |
| Amanda: Diffuse Scleroderma Systemic Sclerosis I am
thirty-nine years old and was diagnosed with diffuse scleroderma systemic
sclerosis in August 2007... |
| More New Stories: April 2008 |
| This is a great day to submit or update your story! |
Submit Your Patient, Caregiver or Survivor Story in:
Arabic | Dutch | English | Español | Deutsche (German)
Italiano | Kannada | Polski | Russian | Spanish | Turkish | Other Languages |
| Share or Update Your Story! |
| We will edit your story, create original artwork to decorate it, prepare it for the web, and post it on this site. Just fill out our simple Story Submission Form for your story, updates, or email address changes. |
|
|
|
