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Scleroderma Support

You are not alone! How can we help you? Let us count the ways!

Caregiver Resources

Caregiver Resources
Caregiving by Dee Dee Hunt
Poems for Caregivers
Caregiver Stories
Caregiver Stories: Memorials & Tributes

Disability Resources

Support Directory
Disability Overview
Assistive Devices and Mobility
Disability Discussions
U.K. Disability Insurance
U.S. Disability Insurance
Free and Low Cost Medications
Hospice Care
International Medical Relief Agencies
Medical Alert Programs
Palliative Care
Patient Rights
Patient Support Programs
Scholarships for Scleroderma
Wish Granting Organizations

For Support Groups and Organizations

Do you want to start a new support group, or affiliate with the ISN?
We network and empower other scleroderma groups in all countries. For no charge, our affiliates receive:
• Free web pages
• Free website listings
• Free promotion of your special events
Just email isn@sclero.org for more info!


ISN Volunteers include a dynamic team of dozens of patients, caregivers, doctors, scientists, translators, artists, designers and writers. Read our profiles or submit your volunteer application!

Forums, Blogs, Chats, Videos

Friendly, moderated, free, worldwide support forum! Join ISN's Sclero Forums Today!
Sclero Forums online support for scleroderma
Sclero Forums offers free daily online moderated support and hosted chats three times a week.
(Video) Scleroderma Hosted Chats by Amanda Thorpe

Worldwide Scleroderma Support Groups

United States Worldwide

Donate or Shop

Please donate now to help those with scleroderma. Thank you!

Hotline Phone Support

CoffeeOur toll-free number for people in the United States is 1-800-564-7099. Best time to call is 9AM-3PM, M-F, CST.
Our direct number (at your expense) for people outside the U.S. is 952-831-3091.

Email Support

Email the ISN using our simple Site Inquiry Form or just email us with your question, concern or comments.

Gift Shop

Raise awareness of scleroderma and support our nonprofit agency while enjoying wonderful items from our ISN Gift Shop! A portion of each item goes to the nonprofit International Scleroderma Network (ISN) to help provide our full range of services, all throughout the world.


The World's First Virtual Pity Party
Diagnosis Roulette Wheel
Judy T's Pity Party Story
Medical Misadventures
Meditation for Depression
Pity Party Mugs
Pity Party Music
Pity Party Slogans
Pity Party Supplies
Undiagnosable Blues
Virtual Dartboard

Personal Stories

Be inspired and learn about scleroderma from the world's largest collection of patient, caregiver and survivor stories for scleroderma and related illnesses! You can browse the stories by first name, language, topic, or date posted:

ISN Book Series

ISN's Voices of Scleroderma book series is based on this sclero.org website, and features articles by world scleroderma experts plus inspiring personal stories. It is great for patients and caregivers alike.

New Personal Stories

Kristi U: Systemic Scleroderma We sold our motel business because it hurt me so bad to work each and every day...
Chris D: Systemic Scleroderma About eighteen months ago my entire body began going haywire...
Iko H: Limited Systemic Sclerosis (Belgium) I am fifty-one years old and in May 2011 my diagnosis of scleroderma was confirmed. I am studying for horse veterinarian and am in my last year...
More New Stories
Submit Your Patient, Caregiver or Survivor Story in:
Arabic  | Dutch  | English  | Español  | Deutsche (German)
Italiano  | Polski  | Russian  | Spanish  | Turkish  | Other Languages
We will edit your story, create original artwork to decorate it, prepare it for the web, and post it on this site. Just fill out our simple Story Submission Form for your story, updates, or email address changes.
Go to Caregivers/Caregiver Stories
About the ISN

This website is certified by Health On the Net Foundation. Click to verify.We are a full-service nonprofit 501(c)(3) providing stellar worldwide research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. This site complies with the HONcode standard for trustworthy health information: verify here.


Scleroderma Hotline (English Only)
Toll Free U.S. Call 1-800-564-7099
Direct Line: Call U.S. 952-831-3091

Post a message in Sclero Forums
Email: isn@sclero.org

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702
United States

AKA Scleroderma from A to Z and SCLERO.ORG
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