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| International Scleroderma Network (ISN) |
| Stellar research, support, education and awareness for scleroderma and related illnesses. |
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| INFORMATION |
SUPPORT |
STORIES |
| ISN Memberships |
| Join the nonprofit ISN! Members receive our ISN Insider Newsletter with the latest medical and support information. Great for scleroderma patients and those who care for them. Join or Donate Now. |
| Coping |
Coping, Depression, Pain, Sex.
Coping, depression, emotional adjustment, quality of life issues, pain, sex, and suicide. |
| Disability Resources |
| Our Disability Resources includes listings of free medication programs. |
| Volunteers |
| ISN Volunteers include a dynamic team of dozens of patients, caregivers, doctors, scientists, translators, artists, designers and writers. Read our profiles or submit your volunteer application! |
| For Support Groups |
| We network and empower other scleroderma groups in all countries with: |
| • Free web pages |
| • Free website listings |
| • Free promotion of your special events |
| ISN Affiliates |
| Our first ISN affiliate community-based support group is the Asociación Colombiana de Esclerodermia led by Francisco Castellanos. |
| New ISN Affiliates |
| Do you want to start a new support group, or affiliate your existing group or organization with the ISN? It's easy! Just contact Shelley Ensz. |
| For Webmasters |
| Our Scleroderma Webmaster's Association offers Scleroderma Sites to Surf! It's free to join the SWA so enter your site or support group today. |
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| English Online Support |
| We invite you to join our free and fabulous: |
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| Español/Spanish Online Support |
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| ISN Book Series |
| ISN's Voices of Scleroderma book series features world experts plus inspiring personal stories! |
| Personal Stories |
| We have the world's largest collection of patient, caregiver and survivor stories for scleroderma and related illnesses! Browse by topic or byalphabetical listing. |
| New Personal Stories |
| Mars: Scleroderma with Full Gastrointestinal Involvement I finally started total parenteral nutrition (TPN, or tubal feeding) in May 2010 and it was an absolute success... |
| Sonya D: Surviving Daughter of Systemic Scleroderma Patient (Portugal) She had difficulty eating, drinking and digesting her food, but yet doctors had no clue... |
| Hazel: Morphea Scleroderma In 1962 when I was just twelve years old, my mother took me to our family doctor with what looked like a blister under my right eye... |
| Angela R: Linear Morphea Scleroderma I am twenty-five now and only have the two spots that I deal with pretty easily. I just hope it doesn't get worse... |
| Heather A: Scleroderma (South Africa) My fingers started to curl up and I could not wear any rings on my fingers anymore as they were so swollen... |
| More New Stories: May-July 2010 |
Submit Your Patient, Caregiver or Survivor Story in:
Arabic | Dutch | English | Español | Deutsche (German)
Italiano | Polski | Russian | Spanish | Turkish | Other Languages |
| We will edit your story, create original artwork to decorate it, prepare it for the web, and post it on this site. Just fill out our simple Story Submission Form for your story, updates, or email address changes. |
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| Keep on Surfing! |
| Go to Caregivers/Caregiver
Stories |
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