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Scleroderma Support

You are not alone! How can we help you? Let us count the ways!

Caregiver Resources

Caregiver Resources
Caregiving by Dee Dee Hunt
Poems for Caregivers
Caregiver Stories
Caregiver Stories: Memorials & Tributes

Disability Resources

Support Directory
Disability Overview
Assistive Devices and Mobility
Disability Discussions
U.K. Disability Insurance
U.S. Disability Insurance
Free and Low Cost Medications
Hospice Care
International Medical Relief Agencies
Medical Alert Programs
Palliative Care
Patient Rights
Patient Support Programs
Scholarships for Scleroderma
Wish Granting Organizations

For Support Groups and Organizations

Do you want to start a new support group, or affiliate with the ISN?
We network and empower other scleroderma groups in all countries. For no charge, our affiliates receive:
• Free web pages
• Free website listings
• Free promotion of your special events
Just email isn@sclero.org for more info!


ISN Volunteers include a dynamic team of dozens of patients, caregivers, doctors, scientists, translators, artists, designers and writers. Read our profiles or submit your volunteer application!

Forums, Blogs, Chats, Videos

Friendly, moderated, free, worldwide support forum! Join ISN's Sclero Forums Today!
Sclero Forums U.K.
Sclero Forums offers free daily online moderated support and hosted chats three times a week.
(Video) Scleroderma Hosted Chats by Amanda Thorpe

Worldwide Scleroderma Support Groups

United States Worldwide

Donate or Shop

Please donate now to help those with scleroderma. Thank you!

Hotline Phone Support

CoffeeOur toll-free number for people in the United States is 1-800-564-7099. Best time to call is 9AM-3PM, M-F, CST.
Our direct number (at your expense) for people outside the U.S. is 952-831-3091.

Email Support

Email the ISN using our simple Site Inquiry Form or just email us with your question, concern or comments.

Gift Shop

Raise awareness of scleroderma and support our nonprofit agency while enjoying wonderful items from our ISN Gift Shop! A portion of each item goes to the nonprofit International Scleroderma Network (ISN) to help provide our full range of services, all throughout the world.


The World's First Virtual Pity Party
Diagnosis Roulette Wheel
Judy T's Pity Party Story
Medical Misadventures
Meditation for Depression
Pity Party Mugs
Pity Party Music
Pity Party Slogans
Pity Party Supplies
Undiagnosable Blues
Virtual Dartboard

Personal Stories

Be inspired and learn about scleroderma from the world's largest collection of patient, caregiver and survivor stories for scleroderma and related illnesses! You can browse the stories by first name, language, topic, or date posted:

ISN Book Series

ISN's Voices of Scleroderma book series is based on this sclero.org website, and features articles by world scleroderma experts plus inspiring personal stories. It is great for patients and caregivers alike.

New Personal Stories

We are revising our personal story submission program. If you would like to post or update an existing story on our site, please email isn@sclero.org.
Sheri M: CREST Syndrome (Update) It has been three years since I've posted and I am happy to say I am still doing well...
Go to Caregivers/Caregiver Stories

SCLERO.ORG is operated by the International Scleroderma Network, which is a full-service U.S. nonprofit 501(c)(3) established in 2002. We provide stellar worldwide research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. Donate or Shop Now.

Questions? Post a message in Sclero Forums or email us directly at isn@sclero.org. Or call our Scleroderma Hotline (English only), Toll Free in U.S. 1-800-564-7099 or Direct at 1-952-831-3091. Ask for our Welcoming Email.

Our headquarters postal mailing address is: International Scleroderma Network (ISN), 7455 France Ave So #266, Edina, MN 55435-4702, United States.

The most important thing in the world to know about scleroderma...is sclero.org!
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