Living with a Chronic Illness
Anxiety and Attitude
Coping with Scleroderma
Depression and Scleroderma
Fear of Progression
|Marriage and Health
Quality of Life with Scleroderma
Sexuality and Scleroderma
Sleep Disorders and Scleroderma
Living with a chronic illness is nobody's choice but there are things we can do to make living with it easier. Making lifestyle changes that reduce stress, limiting our exposure to unhealthy situations, and promoting laughter are good places to start.
Taking medications properly, staying close to family and friends, being aware of how we feel physically and emotionally can also help. For people with scleroderma or any chronic illness, depression is a natural reaction to diagnosis, the symptoms and the major changes in quality of life but as depression can make the physical problems of a disease worse it must be monitored and treated as necessary.
Scleroderma can also affect every aspect of sexuality for men and women so it's important to consider the emotional impact of this. Also be aware that poor sleep can trigger inflammation, worsen pain and lead to depression making it even more difficult to cope with the underlying chronic illness. (Also see Sclero Forums Online Support Group, Hosted Chats, Scleroderma Videos, and Amanda Thorpe)
Causes of Scleroderma: Stress. Stress can cause hormonal and cellular changes in our bodies which can lead to a variety of medical problems. Chronic stress is thought to be a trigger for the development or exacerbation of autoimmune diseases. On the other hand, there might also be a positive role for stress in reducing inflammation in some circumstances. ISN.
Stress and Disease
Stress and Fertility
|Stress and Inflammation
Psychosocial aspects of systemic sclerosis(SSc). To better address the psychosocial needs of persons with SSc, interventions need to be developed and tested. PubMed, Curr Opin Rheumatol, 2013 Nov;25(6):707-13.
The Experience of Emotional Distress Among Women With Scleroderma. We sought to determine how participants described their distress, what they believed caused it, and how they coped. Sage Journals. Qual Health Res September 2012 vol. 22 no. 9 1195-1206.
Traditionally, the experience of serious illness has been approached in two ways: (1) a gloomy perspective of resignation, self-denial, and helplessness, or (2) a Pollyanna approach that denies altogether that there has been a real trauma. Both of these perspectives distort and disguise the reality of chronic illness. Adapted from the book After the Diagnosis : From Crisis to Personal Renewal for Patients With Chronic Illness by Dr. JoAnn LeMaistre.
Art's role in easing autoimmune illness symptoms. An innovative Newcastle research project is measuring the impact of creating art on the symptoms and overall wellbeing of people living with an autoimmune illness. HealthCanal. 10/04/2011.
Living with a Chronic Illness usually requires several lifestyle changes that reduce stress, limit exposure to unhealthy situations, help you get some type of exercise, encourage eating healthy, and promote lots of laughter. ISN.
Coping: Anxiety and Attitude. Anxiety is a symptom that needs to be addressed and minimized when one is dealing with a chronic illness such as scleroderma. ISN.
| Overview of Anxiety |
Scleroderma and Anxiety
- Anxiety: Personal Stories
- Anxiety: Sclero Forums Discussions
| Attitude |
- Attitude Personal Stories
Coping with Scleroderma. A healthy emotional adjustment is an important part of having a good quality of life (QOL). It is even more important when you have a chronic illness such as scleroderma. ISN.
|Overview of Coping with Scleroderma
Coping with a Child's Chronic Illness
Support Group Stories
|Evaluating State of Mind and QOL
Personal Stories of Child with Scleroderma
Depression is a serious sadness that may or may not have a reason. For people with scleroderma or another chronic illness, depression is a natural reaction to the diagnosis, the symptoms, and changes in the quality of life. ISN.
Fatigue in Scleroderma. Mild to extreme fatigue is a common symptom of scleroderma. Fatigue is not in your head. It is caused by physiological problems as well as psychological problems associated with the disease or other symptoms of the disease. ISN.
Sclero Complications and Fatigue
Fear of Progression: Forms of Fear-Expressions in Patients with Rheumatic Diseases. Fear of Progression is a high relevant problem for patients with rheumatic diseases, can differentiated in a variety of fear-expressions in intensity, forms, contents and can be reduced by individual learned coping-strategies. U. Engst-Hastreiter SAT0493-AHP EULAR 2008. (Also see Systemic Sclerosis: Prognosis and Mortality)
Marriage and Health. Support and counseling can be crucial for both the patient and their family members to understand and successfully deal with the many complex challenges of chronic illness. ISN.
Needle Phobia. About 10% of people have a needle phobia, but there's no more need to suffer from the devastating effects of this disorder. ISN.
Pain Management. Many people with scleroderma suffer from chronic pain; therefore, in order to maintain an acceptable quality of life it is important to learn how to manage the pain. ISN.
Pain and Relationships
Pain and Scleroderma
Exercise and Arthritis
Research on Pain
Quality of Life with Scleroderma. The quality of life (QOL) is affected any time something prevents you from maintaining your normal routine or from doing something that you enjoy. A broken arm will affect your QOL on a temporary basis, but a chronic illness may it affect it indefinitely. ISN.
QOL with Scleroderma
Sexuality and Scleroderma. Scleroderma can affect every aspect of sexuality, for both men and women. ISN.
|Video Overview of Sexuality and Scleroderma
Erectile Dysfunction and Scleroderma
Female Sexual Dysfunction
Pregnancy and Scleroderma
Sclero Forums Discussions
Sleep and Scleroderma. Poor sleep has been found to trigger inflammation and worsen pain. It can lead to depression and make it more difficult to cope with chronic illness. ISN.
|Overview of Sleep and Scleroderma
Restless Leg Syndrome
Sleep and Illness
|Sleep and Medications
Suicide Prevention. If you or a loved one are even casually thinking about suicide, this is a medical emergency! Call your local emergency number (911 in the U.S.) or go to your local Emergency Room right away.
|Overview of Suicide
Suicide Risk Factors
Suicide Warning Signs
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