International Scleroderma Network
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Scleroderma from A to Z by the nonprofit International Scleroderma Network
The #1 scleroderma site with 2,000+ pages in 22 languages:
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Earl's Running for SCLERO.ORG!
Sponsor Earl Manns in Green Bay Marathon, May 18, 2008! I'm running in honor of my daughter Mya, and in memory of Sherrill Knaggs. Join the excitement! (Also see: Donate Now, Earl Manns: ISN Fundraiser, and In Memory of Sherrill Knaggs)

Patient & Caregiver Stories Main Menu
ENGLISH Stories by First Name: A  B  C  D  E  F  G  H  I  J  K  L  M  N  O  P  Q  R  S  T  U  V-Z
ENGLISH Stories by Date Posted: 1999 2000 2001 2002 2003 2004 2005 2006 2007 2008
ENGLISH Stories by Illness: Main List, Linear/Morphea, Systemic, Symptoms
Stories by Language: French | German | Greek | Italian | Polish | Romanian | Russian | Spanish | Turkish
Main Story Listings
We welcome patient, caregiver, and survivor stories about scleroderma and/or autoimmune symptoms or diseases, and about those who are undiagnosed.
How to Submit Your Story
Caregivers & Survivors
Difficult Diagnosis
Localized Scleroderma
Systemic Scleroderma		 By Symptoms
Similar Skin Diseases
Story Collections
Other Diseases
How to Submit Your Story
How to Submit Your Story
Story Tip Sheet		 Story Submission Form
Voices of Scleroderma book series
Caregivers & Survivors
Caregivers Survivors: In Memory Of
Difficult Diagnosis
Difficult Diagnosis and Undiagnosed
Localized Scleroderma
Linear Stories (Includes en coup de sabre and Parry Romberg's) Morphea Stories
—Morphea Profunda
—Generalized Morphea
Systemic Scleroderma
CREST Stories
Diffuse Scleroderma		 Limited Scleroderma
Overlap/MCTD/UCTD
By Symptoms
Aspiration Pneumonia
Barrett's Esophagus
Cardiac Involvement
Difficulty Swallowing (Dysphagia)
Digital (Finger) Ulcers
Dysphonia (Hoarseness)
Gangrene and Amputations
Gastroparesis
Esophageal Stricture
Heartburn/Reflux
Kidney (Renal) Involvement
Neurological/Neuropathy		 Neurological/Neuropathy
Nissen Fundoplication Surgery
Osteoporosis
Pleural Effusions
Pregnancy and Scleroderma
Pulmonary Fibrosis
Pulmonary Hypertension
Radiation Treatments
Scleroderma Lung Transplant
Sjögren's Syndrome
Telangiectasia
Also see: Medical (Main Page)
Similar Skin Diseases
Eosinophilic Fasciitis
Lichen Sclerosus
Scleredema adultorum Buschke		 Vitiligo
Also see: Skin Diseases (Main Page)
Other Diseases
Antiphospholipid Syndrome
Cancer
Dermatomyositis
Diabetes
Fibromyalgia
Dermatomyositis and Polymyositis
Interstitial Cystitis		 Polymyositis
Rheumatoid Arthritis
Systemic Lupus Erythematosus
Thyroid Disease
Other Story Collections
Also see: Autoimmune Diseases
Submit Your Story
Story Submission Form. Stories are now being accepted for posting on this website from patients with scleroderma or related illnesses, including the undiagnosed...plus from their survivors, caregivers or friends.
Your story can help others feel like they're not alone and raise public awareness of illness and its impact on people's lives. Raising public awareness is an essential step in drumming up the public and financial support for finding a cure.
That's why sharing your story is a small way in which you can make a big difference! See How to Submit Your Story for easy story guidelines and a very simple online Story Submission Form.
New Personal Stories
Jaci: MCTD and Autoimmune Hepatitis Out of fear of going back to the doctors, I tried just to live with it, whatever it was. What I found strange was that nobody seemed to noticed how terrible I was feeling, not even the doctors...
Heather: Vitiligo, Hypothyroidism, and now Linear Morphea I am not too concerned about the other two conditions since there really is nothing you can do about the vitiligo, and the thyroid is under control. The morphea is what is bugging me...
Amanda: Diffuse Scleroderma Systemic Sclerosis I am thirty-nine years old and was diagnosed with diffuse scleroderma systemic sclerosis in August 2007...
More New Stories: April 2008
This is a great day to submit or update your story!
Submit Your Patient, Caregiver or Survivor Story in:
Arabic | Dutch | English | Español | Deutsche (German)
Italiano | Kannada | Polski | Russian | Spanish | Turkish | Other Languages
Share or Update Your Story!
We will edit your story, create original artwork to decorate it, prepare it for the web, and post it on this site. Just fill out our simple Story Submission Form for your story, updates, or email address changes.
Keep on Surfing!
Go to Section A: English Stories
Contact ISN
Email Postal Mail Phone
Inquiry Form (English) Mail-In Donation/Order Form Online Donation/Order Form
Inquiry Form (Spanish) Website: www.sclero.org Please contact us in English.
Email:
isn@sclero.org
webmaster@sclero.org

Or post a message in ISN's Sclero Forums for free well-moderated support and information, 24 hours a day!		 International Scleroderma Network
7455 France Ave So #266
Edina, MN 55435
USA		 Toll Free Hotline in U.S.
1-800-564-7099

Direct Line 1-952-831-3091
Arranging a Memorial, Fundraiser, Special Donation or P.R.?
We will make a custom donation form and link for you, and send thank you's and acknowledgement cards. We list donors and events in our website and newsletter. Please help raise awareness of scleroderma and related illnesses by mentioning the nonprofit International Scleroderma Network at sclero.org in conversations, speeches, web sites, and publications.
Thank you for helping us tackle scleroderma worldwide!
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