Story
Submission Form. Stories are now being accepted
for posting on this website from patients with scleroderma
or related illnesses, including the undiagnosed...plus
from their survivors, caregivers or friends.
Your story can help others feel like
they're not alone and raise public awareness of illness
and its impact on people's lives. Raising public awareness
is an essential step in drumming up the public and
financial support for finding a cure.
That's why sharing your story is a small
way in which you can make a big difference! See How
to Submit Your Story for easy story guidelines
and a very simple online Story
Submission Form.
New Personal Stories
Jaci: MCTD and Autoimmune HepatitisOut of fear of going back to the doctors, I tried just to live with it, whatever it was. What I found strange was that nobody seemed to noticed how terrible I was feeling, not even the doctors...
Heather: Vitiligo, Hypothyroidism, and now Linear MorpheaI am not too concerned about
the other two conditions since there really is nothing you can do about
the vitiligo, and the
thyroid is under control. The morphea is what is bugging me...
We will edit your story, create original artwork to decorate it, prepare it for the web, and post it on this site. Just fill out our simple Story Submission Form for your story, updates, or email address changes.
Or post a message in ISN's Sclero Forums for free well-moderated support and information, 24 hours a day!
International Scleroderma Network 7455 France Ave So #266 Edina, MN 55435 USA
Toll Free Hotline in U.S. 1-800-564-7099
Direct Line 1-952-831-3091
Arranging a Memorial, Fundraiser, Special Donation or P.R.?
We will make a custom donation form and link for you, and send thank you's and acknowledgement cards. We list donors and events in our website and newsletter. Please help raise awareness of scleroderma and related illnesses by mentioning the nonprofit International Scleroderma Network at sclero.org in conversations, speeches, web sites, and publications.