Warm Hugs
Get a FREE warm hug today at
Search sclero.org:
 
The most important thing in the world to know about
scleroderma is sclero.org with 5,000+ pages in 23 languages!
 
Earn $50 for PAH Marketing Research Survey!
Home   Donate/Shop   Medical   News   *Sclero Forums*   Support   Languages/Countries
Patient & Caregiver Stories Main Menu
(English) Stories by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z
Stories in Other Languages: French | German | Greek | Italian | Polish | Romanian | Russian | Spanish | Turkish
Stories by Date Posted: 1999 2000 2001 2002 2003 2004 2005 2006 2007 2008 2009 2010

Main Story Listings

We welcome patient, caregiver, and survivor stories about scleroderma and/or autoimmune symptoms or diseases, and about those who are undiagnosed.
*How to Submit Your Story*
Caregivers & Survivors
Difficult Diagnosis
Localized Scleroderma
Systemic Scleroderma
By Symptoms
Similar Skin Diseases
Stories on Other Web Sites
Other Diseases
How to Submit Your Story
How to Submit Your Story
Story Tip Sheet
Story Submission Form
Voices of Scleroderma book series
Caregivers & Survivors
Caregivers Survivors: In Memory Of
Difficult Diagnosis
Difficult Diagnosis and Undiagnosed
Localized Scleroderma
Linear Stories (Includes en coup de sabre and Parry Romberg's) Morphea Stories
Morphea Profunda
Generalized Morphea
Systemic Scleroderma
CREST Stories
Diffuse Scleroderma
Limited Scleroderma
Overlap/MCTD/UCTD
By Symptoms
Aspiration Pneumonia
Barrett's Esophagus
Cardiac Involvement
Difficulty Swallowing (Dysphagia)
Digital (Finger) Ulcers
Dysphonia (Hoarseness)
Gangrene and Amputations
Gastroparesis
Esophageal Stricture
Heartburn/Reflux
Kidney (Renal) Involvement
Neurological/Neuropathy
Neurological/Neuropathy
Nissen Fundoplication Surgery
Osteoporosis
Pleural Effusions
Pregnancy and Scleroderma
Pulmonary Fibrosis
Pulmonary Hypertension
Radiation Treatments
Scleroderma Lung Transplant
Sjögren's Syndrome
Telangiectasia
Also see: Medical (Main Page)
Similar Skin Diseases
Eosinophilic Fasciitis
Lichen Sclerosus
Scleredema adultorum Buschke
Vitiligo
Also see: Skin Diseases (Main Page)
Other Diseases
Antiphospholipid Syndrome
Cancer
Dermatomyositis
Diabetes
Fibromyalgia
Dermatomyositis and Polymyositis
Interstitial Cystitis
Polymyositis
Rheumatoid Arthritis
Systemic Lupus Erythematosus
Thyroid Disease
Stories on Other Web Sites
Also see: Autoimmune Diseases
Submit Your Story
Story Submission Form. Stories are now being accepted for posting on this website from patients with scleroderma or related illnesses, including the undiagnosed...plus from their survivors, caregivers or friends.
Your story can help others feel like they're not alone and raise public awareness of illness and its impact on people's lives. Raising public awareness is an essential step in drumming up the public and financial support for finding a cure.
That's why sharing your story is a small way in which you can make a big difference! See How to Submit Your Story for easy story guidelines and a very simple online Story Submission Form.
New Personal Stories
Mars: Scleroderma with Full Gastrointestinal Involvement I finally started total parenteral nutrition (TPN, or tubal feeding) in May 2010 and it was an absolute success...
Sonya D: Surviving Daughter of Systemic Scleroderma Patient (Portugal) She had difficulty eating, drinking and digesting her food, but yet doctors had no clue...
Hazel: Morphea Scleroderma In 1962 when I was just twelve years old, my mother took me to our family doctor with what looked like a blister under my right eye...
Angela R: Linear Morphea Scleroderma I am twenty-five now and only have the two spots that I deal with pretty easily. I just hope it doesn't get worse...
Heather A: Scleroderma (South Africa) My fingers started to curl up and I could not wear any rings on my fingers anymore as they were so swollen...
More New Stories: May-July 2010
Submit Your Patient, Caregiver or Survivor Story in:
Arabic  | Dutch  | English  | Español  | Deutsche (German)
Italiano  | Polski  | Russian  | Spanish  | Turkish  | Other Languages
We will edit your story, create original artwork to decorate it, prepare it for the web, and post it on this site. Just fill out our simple Story Submission Form for your story, updates, or email address changes.
 
Go to Section A: English Stories
 
SCLERO.ORG is brought to you by the nonprofit International Scleroderma Network (ISN). The ISN is a full-service nonprofit scleroderma charitable foundation providing stellar research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension.
  1. Post a message in Sclero Forums
  2. Email: isn@sclero.org
  3. English Email Form
  4. Español Email Form
  5. Italiano Email Form
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702
United States

This website is certified by Health On the Net Foundation. Click to verify.
This site complies with the HONcode standard for trustworthy health information: verify here.

Toll Free Hotline in U.S.
Hours: 9am-3pm CST only.
Please leave a complete message, in English.
1-800-564-7099
Direct Line
1-952-583-5735
We are also known as the Scleroderma from A to Z web site.
Privacy Policy, Financial Disclosure, and Disclaimer.
© Copyright 1998-2010 International Scleroderma Network
All Rights Reserved
 
Home   Donate   Medical   News   *Sclero Forums*   Support   Translations   Search