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2001, 2000, 1999
2000 Stories by Month Posted
Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

January 2000

Joan Elston: Systemic Scleroderma I'm 61 years of age and live with my husband Bryan in Durban South Africa. My health problems go a long way back...
Catherine: Mother of Linear Scleroderma Patient Emma's linear scleroderma started on her left cheek at the age of four years and by the time she was eight that side of her face was quite deformed...
Connie: Surviving Daughter of Scleroderma Patient My mother lived with scleroderma for thirty-nine years and just passed away on January 10, 1999. at the age of fifty-two...

February 2000

Kappy: Sister of Diffuse Scleroderma Patient So now, I offer my sister's story with the belief that it too will inspire the same hope I once found...
Catherine S: Surviving Daughter of Pulmonary Fibrosis Patient It's been nearly nine months ago now. I miss my mother every day...
Melinda: Granddaughter of Systemic Scleroderma Patient My grandmother was diagnosed with systemic scleroderma approximately twenty-five years ago...
Dwight: Surviving Son of Scleroderma Patient My dear mother, Drema L Shaver, passed away one year ago today...

March 2000

Sharon: CREST with Limited Scleroderma and Sjögren's (Australia) Day by day I discover another food I cannot eat, as I get heartburn (Esophageal Dysfunction) and my mouth and my tongue burn. I cannot eat any fruit or fruit juices...
Kathy Gaither: Mother of Juvenile Scleroderma Patient I decided that I was going to turn our negative experience with scleroderma into something positive for us and for other parents...
Update : Krissy: Systemic Scleroderma/Stem Cell Transplant Patient Krissy finally had her stem cell transplant on 3-7-00...
Carmen Rijos: Systemic Scleroderma Carmen is in need of a stem cell transplant for scleroderma. This is a request for donations for the Carmen Rijos Private Foundation...

April 2000

Angiola: Sclerodermia Sistemica Progressiva La sclerosi sistemica progressiva mi stata riscontrata nel febbraio 1997, quando avevo 57 anni, la diagnosi stata immediata...
Tammy: Mother of Son with Linear and Morphea Scleroderma Brandan has linear scleroderma on his right side and morphea on his chest pretty bad...
Pam: Systemic Scleroderma for 27 Years I have had several amputations. I now have only one full finger on my left hand and one finger and thumb good as can be expected on my right hand...
Marilyn: Diffuse Scleroderma Being that I was a nurse you would think that I should have picked up on this myself...
Jo: Mother of a Child with Morphea Scleroderma Last year during the summer we noticed that our daughter had a blotchy, purple/red "rash"...
Kellie: Thyroid Cancer, Fibromyalgia, Hashimoto's Thyroiditis I am so relieved to read about so many people who have had the same experiences and symptoms as myself...
Phyllis: Morphea At age 63, I noticed shiny places on my abdomen. I thought it was a fungus. I would welcome any e-mails from anyone with this disease...

May 2000

Update: Jo: Mother of a Child with Morphea Scleroderma Last year during the summer we noticed that our daughter had a blotchy, purple/red "rash"...
Update: Kellie: Thyroid Cancer, Fibromyalgia, Hashimoto's Thyroiditis I have recently been diagnosed with Raynaud's and Sjögren's. I am in the process of trying to be diagnosed with scleroderma....
Update: Pam: Systemic Scleroderma for 27 Years If things go wrong, smile and rest if you must but do not you QUIT...

June 2000

Deborah Peck: Still Undiagnosed I first noticed my hands turning white in 1992 after my father's funeral...

July 2000

Trish: Spouse of a Limited Scleroderma Patient My husband was diagnosed with scleroderma in June of 2000. We had never heard of the disease before, but boy do we know alot now thanks to this site...
Simo: Sindrome di Sjögren Ciao sono Simonetta da Bologna e ho 23 anni. L'anno scorso mi stata diagnosticata la Sindrome di Sjögren.
Crystal: Morphea It is a very misunderstood disease. There are so many different types. I have mine on my spine, oval shaped and looks like a bruise...
Storia: Gianna - Sclerodermia Sistemica Salve, scrivo questa storia a nome di mia madre, la quale non molto pratica nell'uso del pc. Dunque tutto ebbe inizio nel mese di maggio 1998...

August 2000

Pat: CREST Scleroderma They had to do surgery and take calcium deposits out of my knee. In May of 1998 they did surgery on my left elbow...

September 2000

Barb: Diffuse Systemic Scleroderma Is there anyone out there gong through the same thing? I could really use an understanding Email buddy right now...
Cathy: Probable CREST Scleroderma It really starting going bad for me in November of 1999. I work on rural mail delivery and live in Quebec, Canada...
Story Update: Trish: Spouse of a Diffuse Scleroderma Patient My husband was diagnosed with scleroderma in June of 2000. We had never heard of the disease before, but boy do we know alot now thanks to this site...
LaVonne: Surviving Mother of a Daughter with MCTD Hello, I am the mother of an only daughter who had Mixed Connective Tissue Disease (MCTD). She died in March 2000, at thirty-five years of age...
Sandie: CREST with Raynaud's I consider myself very lucky to have received my CREST diagnosis at an early stage. I had Raynaud's for a few years but no diagnosis of CREST...

October 2000

Story Update: Melinda: Granddaughter of Systemic Scleroderma Patient My grandmother was diagnosed with systemic scleroderma approximately twenty-five years ago...
Kelli: Morphea Scleroderma I am a twenty-six-year-old, married, mother of two girls in Texas. I was diagnosed with Morphea in the first grade...
Rouge: Sclerodermia Limitata Ho 35 anni e fino a due anni fa pensavo di soffrire solo del fenomeno di Raynaud poi visto le ulcerette sulle dita delle mani...
Story Update: Kellie...

November 2000

Tina G: Systemic Scleroderma and Interstitial Cystitis Interstitial Cystitis is a bladder disease that destroys the lining of the bladder and causes it to harden and shrink. The symptoms are frequent urination, pain and pressure...
Tara: Systemic Scleroderma I was diagnosed with scleroderma in January 2000, but I have had it since April 1997. It only became worse in the new year...
Valerie: Mother of Morphea Patient We noticed that our son was developing a purplish "rash" on his left leg when he was about four years old...
(Spanish) Amelia Kreng: Esclerodermia-CREST
John B: Eosinophilic Fasciitis or Scleroderma-Like Condition I have knee contractures that prevent me from walking, very tight skin in the legs...
Tracy: Undiagnosed Please share your story with me. I am really tired of waiting and wondering...
John: Surviving Son-in-Law of Scleroderma Patient My mother-in-law worked as a custodian and that may be a factor in causing her scleroderma. Has anyone else out there been a custodian and now suffers this affliction?
Carol Langenfeld: Diffuse Scleroderma People tell me that I have earned my credentials as a "certified patient" the hard way after more than twenty-three years...
Tammy W: Morphea Scleroderma I am thirty-one years old and I have just recently been diagnosed with what I think he called "Spotted Morphea"...
Jamie: Surviving Spouse of Progressive Systemic Sclerosis Patient My husband Jerry, age 35, was diagnosed with scleroderma in January 2000...
Karen: Mother of Generalized Guttate Morphea Patient As the mother of ten-year-old daughter who has been struggling with what she refers to as "weird skin", I was so pleased to come across this web site to share our story...
Story Update: Deborah Peck: Diffuse Systemic Sclerosis Thanks to this, I received a "quick" diagnosis of diffuse systemic sclerosis with lung involvement in August 2000. I began a series of six low dose chemo treatments four weeks ago...
Mandy: Mother of Morphea Patient My daughter was in the eighth grade, busy with end of school year activities and in training with her swim team, when she noticed a hard area on the right side of her neck...
Story Update: Kelli: Morphea Two days after my story was posted, I was contacted by the local chapter of the SF...

December 2000

Lisa A: Spouse of Systemic Scleroderma Patient My husband was diagnosed in July 2000. We did not expect to hear he had scleroderma, and at first neither of us understood what it was...
Laura C: Mother of Morphea Scleroderma Patient My 13-year-old son was diagnosed with morphea in September 2000. He is very athletic and does not seem to have any physical limitations from it...
(French) Histoire: Gilbert Boucher L'an pass, mon pre alors g de 72 ans, a t opr pour une tumeur cancreuse sur les intestins. Quelques mois aprs l`opration, il a dvelopp la sclrodermie, probablement d au choc post-opratoire...
Lama: Morphea Scleroderma If anyone reads this, please send me an e-mail and tell me anything you know about morphea...
Sue Ann: Mother of Son with Scleredema Scleredema is an illness similar to scleroderma. It is also known as Scleredema Adultorum, Scleredema Adultorum of Buschke, Scleredema Diabeticorum, and Scleredema Diabeticorum of Buschke...
Update: Kelli: Morphea Scleroderma I'll be starting cosmetology school in January, and the vain side of me wanted to know if we could lighten up the spots that can't be covered by clothing...
Update: Marilyn: Diffuse Scleroderma I am from Canada and would like to find someone who knows scleroderma society up here...
Jennifer: Surviving Daughter of Overlap Syndrome Patient This letter was written by my dad and was read at my mother's memorial service in October of this year...
Update: Sheila: CREST with Limited Scleroderma I just turned 29 on December 1st. It's been over a year since I have had a digital ulcer, which still amazes me.

2014 New Personal Stories

Sheri M: CREST Syndrome (Update) It has been three years since I've posted and I am happy to say I am still doing well...
More New Stories
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