2000 Stories
by Month Posted |
|
January
2000 |
Joan
Elston: Systemic Scleroderma I'm
61 years of age and live with my husband Bryan in Durban
South Africa. My health problems go a long way back... |
Catherine:
Mother of Linear Scleroderma Patient Emma's
linear scleroderma started on her left cheek at the age
of four years and by the time she was eight that side
of her face was quite deformed... |
Connie:
Surviving Daughter of Scleroderma Patient My
mother lived with scleroderma for thirty-nine years and
just passed away on January 10, 1999. at the age of fifty-two... |
February
2000 |
Kappy:
Sister of Diffuse Scleroderma Patient So
now, I offer my sister's story with the belief that it
too will inspire the same hope I once found... |
Catherine
S: Surviving Daughter of Pulmonary Fibrosis Patient It's
been nearly nine months ago now. I miss my mother every
day... |
Melinda:
Granddaughter of Systemic Scleroderma Patient My
grandmother was diagnosed with systemic scleroderma approximately
twenty-five years ago... |
Dwight:
Surviving Son of Scleroderma Patient My
dear mother, Drema L Shaver, passed away one year ago today... |
March
2000 |
Sharon:
CREST with Limited Scleroderma and Sjögren's (Australia)
Day by day I discover another food I cannot eat, as I get
heartburn (Esophageal Dysfunction) and my mouth and my
tongue burn. I cannot eat any fruit or fruit juices... |
Kathy
Gaither: Mother of Juvenile Scleroderma Patient I
decided that I was going to turn our negative experience
with scleroderma into something positive for us and for
other parents... |
Update: Krissy:
Systemic Scleroderma/Stem Cell Transplant Patient Krissy
finally had her stem cell transplant on 3-7-00... |
Carmen
Rijos: Systemic Scleroderma Carmen
is in need of a stem cell transplant for scleroderma. This
is a request for donations for the Carmen Rijos Private
Foundation... |
April
2000 |
| Angiola:
Sclerodermia Sistemica Progressiva La
sclerosi sistemica progressiva mi stata riscontrata nel febbraio
1997, quando avevo 57 anni, la diagnosi stata immediata... |
| Tammy:
Mother of Son with Linear and Morphea Scleroderma Brandan
has linear scleroderma on his right side and morphea on his
chest pretty bad... |
| Pam:
Systemic Scleroderma for 27 Years I have had several
amputations. I now have only one full finger on my left hand
and one finger and thumb good as can be expected on my right
hand... |
| Marilyn:
Diffuse Scleroderma Being that
I was a nurse you would think that I should have picked up
on this myself... |
| Jo:
Mother of a Child with Morphea Scleroderma Last
year during the summer we noticed that our daughter had a
blotchy, purple/red "rash"... |
| Kellie:
Thyroid Cancer, Fibromyalgia, Hashimoto's Thyroiditis I
am so relieved to read about so many people who have had
the same experiences and symptoms as myself... |
| Phyllis:
Morphea At age 63, I noticed
shiny places on my abdomen. I thought it was a fungus. I
would welcome any e-mails from anyone with this disease... |
| May 2000 |
| Update:
Jo: Mother of a Child with Morphea Scleroderma Last
year during the summer we noticed that our daughter had a
blotchy, purple/red "rash"... |
| Update:
Kellie: Thyroid Cancer, Fibromyalgia, Hashimoto's Thyroiditis I
have recently been diagnosed with Raynaud's and Sjögren's. I am in the process of trying to be diagnosed with scleroderma.... |
| Update:
Pam: Systemic Scleroderma for 27 Years If
things go wrong, smile and rest if you must but do not you
QUIT... |
| June 2000 |
| Deborah
Peck: Still Undiagnosed I first noticed my hands turning white in 1992 after my father's
funeral... |
| July 2000 |
| Trish:
Spouse of a Limited Scleroderma Patient My
husband was diagnosed with scleroderma in June of 2000. We
had never heard of the disease before, but boy do we know
alot now thanks to this site... |
| Simo:
Sindrome di Sjögren Ciao
sono Simonetta da Bologna e ho 23 anni. L'anno scorso mi
stata diagnosticata la Sindrome di Sjögren. |
| Crystal:
Morphea It is a very misunderstood
disease. There are so many different types. I have mine on
my spine, oval shaped and looks like a bruise... |
| Storia:
Gianna - Sclerodermia Sistemica Salve,
scrivo questa storia a nome di mia madre, la quale non molto
pratica nell'uso del pc. Dunque tutto ebbe inizio nel mese
di maggio 1998... |
| August 2000 |
| Pat:
CREST Scleroderma They had
to do surgery and take calcium deposits out of my knee. In
May of 1998 they did surgery on my left elbow... |
| September 2000 |
| Barb:
Diffuse Systemic Scleroderma Is
there anyone out there gong through the same thing? I could
really use an understanding Email buddy right now... |
| Cathy:
Probable CREST Scleroderma It
really starting going bad for me in November of 1999. I
work on rural mail delivery and live in Quebec, Canada... |
| Story
Update: Trish: Spouse of a Diffuse Scleroderma Patient My
husband was diagnosed with scleroderma in June of 2000.
We had never heard of the disease before, but boy do we
know alot now thanks to this site... |
| LaVonne:
Surviving Mother of a Daughter with MCTD Hello,
I am the mother of an only daughter who had Mixed Connective
Tissue Disease (MCTD). She died in March 2000, at thirty-five
years of age... |
| Sandie:
CREST with Raynaud's I consider
myself very lucky to have received my CREST diagnosis at
an early stage. I had Raynaud's for
a few years but no diagnosis of CREST... |
October
2000 |
Story
Update: Melinda: Granddaughter of Systemic Scleroderma
Patient My grandmother was
diagnosed with systemic scleroderma approximately twenty-five
years ago... |
| Kelli:
Morphea Scleroderma I am a
twenty-six-year-old, married, mother of two girls in Texas.
I was diagnosed with Morphea in the first grade... |
| Rouge:
Sclerodermia Limitata Ho 35
anni e fino a due anni fa pensavo di soffrire solo del fenomeno
di Raynaud poi visto le ulcerette sulle dita delle mani... |
| Story
Update: Kellie ... |
November
2000 |
| Tina
G: Systemic Scleroderma and Interstitial Cystitis Interstitial
Cystitis is a bladder disease that destroys the lining of
the bladder and causes it to harden and shrink. The symptoms
are frequent urination, pain and pressure... |
| Tara:
Systemic Scleroderma I was
diagnosed with scleroderma in January 2000, but I have had
it since April 1997. It only became worse in the new year... |
| Valerie:
Mother of Morphea Patient We
noticed that our son was developing a purplish "rash" on
his left leg when he was about four years old... |
| (Spanish) Amelia
Kreng: Esclerodermia-CREST |
| John
B: Eosinophilic Fasciitis or Scleroderma-Like Condition I
have knee contractures that prevent me from walking, very
tight skin in the legs... |
| Tracy:
Undiagnosed Please share your
story with me. I am really tired of waiting and wondering... |
| John:
Surviving Son-in-Law of Scleroderma Patient My
mother-in-law worked as a custodian and that may be a factor
in causing her scleroderma. Has anyone else out there been
a custodian and now suffers this affliction? |
Carol
Langenfeld: Diffuse Scleroderma (Carol
is co-author of the book
Living
Better : Every Patient's Guide to Living with Illness) People
tell me that I have earned my credentials as a "certified
patient" the hard way after more than twenty-three years... |
| Tammy
W: Morphea Scleroderma I am
thirty-one years old and I have just recently been diagnosed
with what I think he called "Spotted Morphea"... |
| Jamie:
Surviving Spouse of Progressive Systemic Sclerosis Patient My
husband Jerry, age 35, was diagnosed with scleroderma in
January 2000... |
| Karen:
Mother of Generalized Guttate Morphea Patient As
the mother of ten-year-old daughter who has been struggling
with what she refers to as "weird skin", I was
so pleased to come across this web site to share our story... |
| Story
Update: Deborah Peck: Diffuse Systemic Sclerosis Thanks
to this, I received a "quick" diagnosis of diffuse
systemic sclerosis with lung involvement in August 2000.
I began a series of six low dose chemo treatments four weeks
ago... |
| Mandy:
Mother of Morphea Patient My
daughter was in the eighth grade, busy with end of school
year activities and in training with her swim team, when
she noticed a hard area on the right side of her neck... |
| Story
Update: Kelli: Morphea Two
days after my story was posted, I was contacted by the
local chapter of the SF... |
December
2000 |
| Lisa
A: Spouse of Systemic Scleroderma Patient My
husband was diagnosed in July 2000. We did not expect to
hear he had scleroderma, and at first neither of us understood
what it was... |
| Laura
C: Mother of Morphea Scleroderma Patient My
13-year-old son was diagnosed with morphea in September 2000.
He is very athletic and does not seem to have any physical
limitations from it... |
(French)
Histoire: Gilbert Boucher L'an
pass, mon pre alors g de 72 ans, a t opr pour une tumeur
cancreuse sur les intestins. Quelques mois aprs l`opration,
il a dvelopp la sclrodermie, probablement d au choc post-opratoire... |
| Lama:
Morphea Scleroderma If anyone
reads this, please send me an e-mail and tell me anything
you know about morphea... |
| Sue
Ann: Mother of Son with Scleredema Scleredema is
an illness similar to scleroderma. It is also known as Scleredema
Adultorum, Scleredema Adultorum of Buschke, Scleredema Diabeticorum,
and Scleredema Diabeticorum of Buschke... |
| Update:
Kelli: Morphea Scleroderma I'll
be starting cosmetology school in January, and the vain side
of me wanted to know if we could lighten up the spots that
can't be covered by clothing... |
| Update:
Marilyn: Diffuse Scleroderma I
am from Canada and would like to find someone who knows
scleroderma society up here... |
| Jennifer:
Surviving Daughter of Overlap Syndrome Patient This
letter was written by my dad and was read at my mother's
memorial service in October of this year... |
| Update:
Sheila: CREST with Limited Scleroderma I
just turned 29 on December 1st. It's been over a year since
I have had a digital ulcer, which still amazes me. |
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