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January 2002
(Italiano) Veronica: La Sindrome di Sjögren Sono una ragazza di 30 anni da tre anni sono affetta da la Sindrome di Sjögren con alta positività per anticorpi anti-SSA...
(Update) Kellie: Thyroid Cancer, Sjögren's, Raynaud's, Underlying Scleroderma After two more years of getting sicker, more weak, increased headaches, complete loss of movement of left arm...
(Update) LJ Fullerton: CREST Scleroderma, Rheumatoid Arthritis, Fibromyalgia, Hashimoto's Thyroiditis, Hematoma and Osteomyelitis I have learned a lot from what happened to me and want the world to learn from my experience before I depart from it...
(Update) Marilyn: Diffuse Scleroderma In September 2001, I had a G-J tube inserted into my stomach...
(Update) Pammy: Systemic Sclerosis for 27 Years She has had a very long week of pre-operations, which has delayed her finger amputations...
B. A. McKinny: Mother of Atrophoderma of Pierini and Pasini Patient My 17 year old daughter was told she had Atrophoderma of Pierini and Pasini (APP) last year...
Barbs: Systemic Sclerosis, CREST, Raynaud's So from the outset, diagnosis took 20 years...
Stefan: Progressive Systemic Sclerosis I have been moving towards this diagnosis beginning in 1987 with a heart failure resulting from cardimyopathy...
(Italiano) Maya: Sindrome di Sjögren Ciao a tutti, sono una ragazza di 27 anni erano sette anni che lamentavo disturbi di vario genere...
Sue "SASA": Morphea Scleroderma I am a thirty-eight-year-old woman living in South Australia, where there is a high incidence of morphea...
(Update) Jo: Mother of a Child with Morphea Scleroderma My daughter had her MRI in October 2001, and the good news is the scleroderma only goes as deep as the fat...
(Update) Pammy: Systemic Sclerosis for 27 Years : Pam is in the hospital and I am looking into her e-mails while she has confirmation on further amputations...
Grace: My Mother's Fight Against Pulmonary Fibrosis I lost my Mum 8 months ago, after a 2 year fight against pulmonary fibrosis...
Keenan: Surviving Son of Fibrosing Alveolitis Patient Dad passed away now almost 4 years ago. It still hurts knowing that I will never be able to ask his advice or listen to his corny jokes again...
Michelle S: Daughter of Systemic Scleroderma Patient I am eighteen years old and my father has systemic scleroderma. He has had this disease for about two years now...
Carla M: Morphea I am a 29 year old mother of three. I have localized Morphea on my lower back...
New Personal Stories
Maria T: Daughter of Deceased Scleroderma Patient (Italy) He, upon looking at my mom's face and hands diagnosed her with sclerodermia, in fact he took care of her until the end...
(Italiano) Maria T: Figlia di una Paziente Defunta di Sclerodemia (Italia) Lui, come vide a mia madre disse "tu hai la sclerodermia", guardandole le mani e la faccia...
(Update) Dee B: Limited Scleroderma/CREST Syndrome (South Africa) There is so much I want to add to my original letter after reading more of other peoples stories. I am certainly not getting better but wish I was...
Tessa: Morphea The nurse just told me that I have morphea and knew nothing about it and she told me to look online for information...
More New Stories: August-November 2009
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