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2001, 2000, 1999

January 2002

(Italiano) Veronica: La Sindrome di Sjögren Sono una ragazza di 30 anni da tre anni sono affetta da la Sindrome di Sjögren con alta positività per anticorpi anti-SSA...
(Update) Kellie: Thyroid Cancer, Sjögren's, Raynaud's, Underlying Scleroderma After two more years of getting sicker, more weak, increased headaches, complete loss of movement of left arm...
(Update) LJ Fullerton: CREST Scleroderma, Rheumatoid Arthritis, Fibromyalgia, Hashimoto's Thyroiditis, Hematoma and Osteomyelitis I have learned a lot from what happened to me and want the world to learn from my experience before I depart from it...
(Update) Marilyn: Diffuse Scleroderma In September 2001, I had a G-J tube inserted into my stomach...
(Update) Pammy: Systemic Sclerosis for 27 Years She has had a very long week of pre-operations, which has delayed her finger amputations...
B. A. McKinny: Mother of Atrophoderma of Pierini and Pasini Patient My seventeen-year-old daughter was told she had Atrophoderma of Pierini and Pasini (APP) last year...
Barbs: Systemic Sclerosis, CREST, Raynaud's So from the outset, diagnosis took 20 years...
Stefan: Progressive Systemic Sclerosis I have been moving towards this diagnosis beginning in 1987 with a heart failure resulting from cardimyopathy...
(Italiano) Maya: Sindrome di Sjögren Ciao a tutti, sono una ragazza di 27 anni erano sette anni che lamentavo disturbi di vario genere...
Sue "SASA": Morphea Scleroderma I am a thirty-eight-year-old woman living in South Australia, where there is a high incidence of morphea...
(Update) Jo: Mother of a Child with Morphea Scleroderma My daughter had her MRI in October 2001, and the good news is the scleroderma only goes as deep as the fat...
(Update) Pammy: Systemic Sclerosis for 27 Years : Pam is in the hospital and I am looking into her e-mails while she has confirmation on further amputations...
Grace: My Mother's Fight Against Pulmonary Fibrosis I lost my Mum 8 months ago, after a 2 year fight against pulmonary fibrosis...
Keenan: Surviving Son of Fibrosing Alveolitis Patient Dad passed away now almost 4 years ago. It still hurts knowing that I will never be able to ask his advice or listen to his corny jokes again...
Michelle S: Daughter of Systemic Scleroderma Patient I am eighteen years old and my father has systemic scleroderma. He has had this disease for about two years now...
Carla M: Morphea I am a twenty-nine-year-old mother of three. I have localized Morphea on my lower back...

2014 New Personal Stories

Sheri M: CREST Syndrome (Update) It has been three years since I've posted and I am happy to say I am still doing well...
More New Stories
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