Patient & Caregiver Stories Main Menu
(English) Stories by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z
All Stories by Date Posted: 1999 2000 2001 2002 2003 2004 2005 2006 2007 2008
Stories by Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms
Stories by Language: French | German | Greek | Italian | Polish | Romanian | Russian | Spanish | Turkish
Stories by Month Posted
January 2002
(Italiano) Veronica: La Sindrome di Sjögren Sono una ragazza di 30 anni da tre anni sono affetta da la Sindrome di Sjögren con alta positività per anticorpi anti-SSA...
(Update) Kellie: Thyroid Cancer, Sjögren's, Raynaud's, Underlying Scleroderma After two more years of getting sicker, more weak, increased headaches, complete loss of movement of left arm...
(Update) LJ Fullerton: CREST Scleroderma, Rheumatoid Arthritis, Fibromyalgia, Hashimoto's Thyroiditis, Hematoma and Osteomyelitis I have learned a lot from what happened to me and want the world to learn from my experience before I depart from it...
(Update) Marilyn: Diffuse Scleroderma In September 2001, I had a G-J tube inserted into my stomach...
(Update) Pammy: Systemic Sclerosis for 27 Years She has had a very long week of pre-operations, which has delayed her finger amputations...
B. A. McKinny: Mother of Atrophoderma of Pierini and Pasini Patient My 17 year old daughter was told she had Atrophoderma of Pierini and Pasini (APP) last year...
Barbs: Systemic Sclerosis, CREST, Raynaud's So from the outset, diagnosis took 20 years...
Stefan: Progressive Systemic Sclerosis I have been moving towards this diagnosis beginning in 1987 with a heart failure resulting from cardimyopathy...
(Italiano) Maya: Sindrome di Sjögren Ciao a tutti, sono una ragazza di 27 anni erano sette anni che lamentavo disturbi di vario genere...
Sue "SASA": Morphea Scleroderma I am a thirty-eight-year-old woman living in South Australia, where there is a high incidence of morphea...
(Update) Jo: Mother of a Child with Morphea Scleroderma My daughter had her MRI in October 2001, and the good news is the scleroderma only goes as deep as the fat...
(Update) Pammy: Systemic Sclerosis for 27 Years : Pam is in the hospital and I am looking into her e-mails while she has confirmation on further amputations...
Grace: My Mother's Fight Against Pulmonary Fibrosis I lost my Mum 8 months ago, after a 2 year fight against pulmonary fibrosis...
Keenan: Surviving Son of Fibrosing Alveolitis Patient Dad passed away now almost 4 years ago. It still hurts knowing that I will never be able to ask his advice or listen to his corny jokes again...
Michelle S: Daughter of Systemic Scleroderma Patient I am eighteen years old and my father has systemic scleroderma. He has had this disease for about two years now...
Carla M: Morphea I am a 29 year old mother of three. I have localized Morphea on my lower back...
New Personal Stories
Donna: CREST, Raynaud's, possible Fibromyalgia I was diagnosed with CREST (Limited Systemic Scleroderma) by a rheumatologist in 2006. This wasn't really a surprise to me as my mother was diagnosed with diffuse scleroderma in 1998...
Jessica G: Parry-Romberg Syndrome By the time I was about five years old, the disease had already disfigured my left side drastically. I have had over fifty operations and surgical procedures for Romberg's....
Leslie R: Scleroderma, Vitiligo, Lupus, Anemia, Hypertension and Type 2 Diabetes He told me that I have scleroderma and explained what this disease is about. After suffering so long I finally got some answers...
More New Stories: Feb-August 2008
Submit Your Patient, Caregiver or Survivor Story in:
Arabic  | Dutch  | English  | Español  | Deutsche (German)
Italiano  | Kannada  | Polski  | Russian  | Spanish  | Turkish  | Other Languages
We will edit your story, create original artwork to decorate it, prepare it for the web, and post it on this site. Just fill out our simple Story Submission Form for your story, updates, or email address changes.
Keep on Surfing!
Go to February 2002 Stories
Contact ISN. We are a full-service nonprofit agency.
Email: isn@sclero.org or
or post a message in our Sclero Forums !
Shop, Join or Donate Now
(Also see: Contact ISN )
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702
USA
Toll Free Hotline in U.S. 1-800-564-7099
Direct Line 952-831-3091 (U.S.)
(We are also known as the Scleroderma from A to Z web site.)
© Copyright 1998-2008 International Scleroderma Network
All Rights Reserved