[Skip to Content]
Patient & Caregiver Stories Main Menu
(English) Stories by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z
Stories in Other Languages: French | German | Greek | Italian | Polish | Romanian | Russian | Spanish | Turkish
Stories by Date Posted: 1999 2000 2001 2002 2003 2004 2005 2006 2007 2008 2009 2010
Stories by Month Posted
2011: Jan-Jul
2010: Jan-Apr May-Dec
2009: Jan-Feb Mar-Apr May Jun Jul Aug-Dec
2008: Jan Feb-Sep Oct Nov-Dec
2007: Jan-May Jun Jul Aug Sep Oct-Dec
2006: Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov-Dec
2005: Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2004: Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2003: Jan -Apr May Jun Jul Aug Sep Oct Nov Dec
2002: Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2001, 2000, 1999

January 2002

(Italiano) Veronica: La Sindrome di Sjögren Sono una ragazza di 30 anni da tre anni sono affetta da la Sindrome di Sjögren con alta positività per anticorpi anti-SSA...
(Update) Kellie: Thyroid Cancer, Sjögren's, Raynaud's, Underlying Scleroderma After two more years of getting sicker, more weak, increased headaches, complete loss of movement of left arm...
(Update) LJ Fullerton: CREST Scleroderma, Rheumatoid Arthritis, Fibromyalgia, Hashimoto's Thyroiditis, Hematoma and Osteomyelitis I have learned a lot from what happened to me and want the world to learn from my experience before I depart from it...
(Update) Marilyn: Diffuse Scleroderma In September 2001, I had a G-J tube inserted into my stomach...
(Update) Pammy: Systemic Sclerosis for 27 Years She has had a very long week of pre-operations, which has delayed her finger amputations...
B. A. McKinny: Mother of Atrophoderma of Pierini and Pasini Patient My seventeen-year-old daughter was told she had Atrophoderma of Pierini and Pasini (APP) last year...
Barbs: Systemic Sclerosis, CREST, Raynaud's So from the outset, diagnosis took 20 years...
Stefan: Progressive Systemic Sclerosis I have been moving towards this diagnosis beginning in 1987 with a heart failure resulting from cardimyopathy...
(Italiano) Maya: Sindrome di Sjögren Ciao a tutti, sono una ragazza di 27 anni erano sette anni che lamentavo disturbi di vario genere...
Sue "SASA": Morphea Scleroderma I am a thirty-eight-year-old woman living in South Australia, where there is a high incidence of morphea...
(Update) Jo: Mother of a Child with Morphea Scleroderma My daughter had her MRI in October 2001, and the good news is the scleroderma only goes as deep as the fat...
(Update) Pammy: Systemic Sclerosis for 27 Years : Pam is in the hospital and I am looking into her e-mails while she has confirmation on further amputations...
Grace: My Mother's Fight Against Pulmonary Fibrosis I lost my Mum 8 months ago, after a 2 year fight against pulmonary fibrosis...
Keenan: Surviving Son of Fibrosing Alveolitis Patient Dad passed away now almost 4 years ago. It still hurts knowing that I will never be able to ask his advice or listen to his corny jokes again...
Michelle S: Daughter of Systemic Scleroderma Patient I am eighteen years old and my father has systemic scleroderma. He has had this disease for about two years now...
Carla M: Morphea I am a twenty-nine-year-old mother of three. I have localized Morphea on my lower back...

New Personal Stories

Kristi U: Systemic Scleroderma We sold our motel business because it hurt me so bad to work each and every day...
Chris D: Systemic Scleroderma About eighteen months ago my entire body began going haywire...
Iko H: Limited Systemic Sclerosis (Belgium) I am fifty-one years old and in May 2011 my diagnosis of scleroderma was confirmed. I am studying for horse veterinarian and am in my last year...
More New Stories
Submit Your Patient, Caregiver or Survivor Story in:
Arabic  | Dutch  | English  | Español  | Deutsche (German)
Italiano  | Polski  | Russian  | Spanish  | Turkish  | Other Languages
We will edit your story, create original artwork to decorate it, prepare it for the web, and post it on this site. Just fill out our simple Story Submission Form for your story, updates, or email address changes.
 
Go to February 2002 Stories
About the ISN

This website is certified by Health On the Net Foundation. Click to verify.We are a full-service nonprofit 501(c)(3) providing stellar worldwide research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. This site complies with the HONcode standard for trustworthy health information: verify here.

 

Scleroderma Hotline (English Only)
Toll Free U.S. Call 1-800-564-7099
Direct Line: Call U.S. 952-831-3091

Post a message in Sclero Forums
Email: isn@sclero.org

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702
United States

AKA Scleroderma from A to Z and SCLERO.ORG
Privacy Policy, Financial Disclosure, and Disclaimer.

Home   Medical   News   Sclero Forums   Support   Translations

© Copyright 1998-2014 International Scleroderma Network
All Rights Reserved