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2001, 2000, 1999

February 2002

Update: CJ: Fibromyalgia, UCTD, and Systemic Sclerosis My brother has been diagnosed with Stiff Man Syndrome,which we've been told is a form of neuoropathy, akin to scleroderma...
Sherry: Fibromyalgia and Hypothyroidism He said Fibromyalgia is just pain, and if I could not handle my job, I should quit...
Nan: Mixed Connective Tissue Disease and Fibromyalgia Finally after several years of struggle, one wonderful doctor at OSU got gutsy and gave me the MCTD diagnosis...
(Italiano) Roberta: Morphea Sono una ragazza di 25 anni e due giorni fa mi è stata diagnosticata una macchia di morphea sull'avambraccio destro...
(Update) Buggzy: Autoimmune Hepatitis, Fibromyalgia, Undiagnosed Since my first letter in 1999 I have had many unnamed illnesses...
(Update) Phyllis: Morphea Scleroderma After a year of taking the Vitamin E and rubbing it on three times a day, the lesions disappeared and have not returned...
A.M. Keyes: Surviving Daughter My father died on February 9, 2002 from pulmonary fibrosis, a complication of scleroderma...
Shirley Wright: Limited Scleroderma I have had this disease for over twenty years now and I plan on being around a lot longer...
(Update) Linda: Morphea Scleroderma I have gotten four new spots the last months...
(Update) Mo: Mother of Undiagnosed Girl Alexa passed the "eat the radioactive sandwich test" with flying colors...
Cindy: Undifferentiated Connective Tissue Disease (UCTD) He seems to think that I have Systemic Lupus Erythematosus, but until my symptoms show more criteria for it, he can't call it that...
Star: Widow of Scleroderma Patient I am 43 and I lost my husband on October 7, 2001...
Kathi: Scleroderma/Lupus I am 43 years old and have not been feeling well for 10 years...
(Update) Deborah Peck: Diffuse Systemic Sclerosis My doctor contacted Dr. White in Maryland who thought that I have not received enough cytoxan...
(Update) Dienne: Morphea plus Possible CREST I am now Chair of the Scleroderma Awareness Committee as well as the Graphic Designer for the International Scleroderma Network...
CJ: Fibromyalgia, UCTD, and Systemic Sclerosis I have been going to doctors for over five years now and have just recently been diagnosed...
Soose: Limited Scleroderma I may have had scleroderma for the last year and a half or two years and did not know it...
Joy: Mom of Cassi, Who Has Morphea I carefully checked the bruises; Cassi (age 6) said that they did not hurt and she did not have anyone hit her...
Teresa: Scleroderma I was just diagnosed a few hours ago. Tears are streaming down my face...
(Update) Deborah Peck: Diffuse Systemic Sclerosis I try to live one day at a time and trust God to heal me. I know He may use cytoxan to do it and/or a combination of other treatments... /td>
Takeya: Morphea Scleroderma "I thank God that it's not harmful to me or the baby..."
(Update) Dawn: Confirmed Early Scleroderma During the past year I have made a remarkable turnaround both symptomatically and emotionally...
(Italiano) Arianna: Early LcSSc con interessamento polmonare (DLCOc=44%), recente alveolite polmonare, esofagite di II grado con ernia iatale Mi chiamo Arianna e sono una ragazza di 26 anni...

2014 New Personal Stories

Sheri M: CREST Syndrome (Update) It has been three years since I've posted and I am happy to say I am still doing well...
More New Stories
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