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October 2002

Renae B: CREST, Sjögren's, Raynaud's I was diagnosed with scleroderma about four years ago at the University of Iowa Hospitals in Iowa City, Iowa...
Salina: Surviving Granddaughter of Scleroderma Patient My grandma died about two years ago from scleroderma. I am not too sure when she was diagnosed, but when I was in the sixth grade, we found out that she was sick...
Maria: Scleroderma and Raynaud's (Ukraine) I live in a small town and in a poor country. My doctors have no computers or medical magazines...
Lisa R: Difficult Diagnosis - Scleroderma? My story started five months ago when I woke up one day and out of nowhere, my fingers were tingling and a bit swollen...
Mary S: Diffuse Scleroderma When he called the internist I was in the office and I heard him say, "I think I'm sending you a patient who has scleroderma but I'm not sure. She has a lot of the symptoms."
Dave Wilcher: Diffuse Scleroderma Early in 1998, I noticed my hands were swollen. I had a hard time gripping the handle of my coffee cup...
Michelle (JR): Morphea Scleroderma My doctor had never seen anything like this, and prescribed some cortisone cream assuming it was a fungus and it would disappear in a week...
Heidi: Difficult Diagnosis of UCTD Do these symptoms resemble the beginning symptoms for others who have gone on to be diagnosed with scleroderma?
Monica: MCTD This diagnosis is a bittersweet one for us. Yes, after seven years of hell, we now have a name...
Melanie W: Linear Morphea Scleroderma The only good thing about this disease is that it makes you a better person....
Pam M: Diffuse Scleroderma, CREST and Raynaud's I went to a rheumatologist and after she had almost killed me with all the tests and drugs for a year, she threw her hands up and said there was nothing else she could do...
Toni H: Morphea Scleroderma I was diagnosed as a child with a strange skin complaint, but was given no information about it...
Brenda K: Morphea Scleroderma I was diagnosed with Morphea Scleroderma about twelve years ago. It started with a dark linear mark on my lower back...
(Update) Sherrill: Diffuse Systemic Scleroderma I am steadily getting more wrinkles on my face as my skin softens. Who would have thought that I would welcome this...
September 2002 Patient & Caregiver Stories

New Personal Stories

Kristi U: Systemic Scleroderma We sold our motel business because it hurt me so bad to work each and every day...
Chris D: Systemic Scleroderma About eighteen months ago my entire body began going haywire...
Iko H: Limited Systemic Sclerosis (Belgium) I am fifty-one years old and in May 2011 my diagnosis of scleroderma was confirmed. I am studying for horse veterinarian and am in my last year...
More New Stories
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Go to Stories by Date Posted for November 2002
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