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May 2003

Lisa S: Morphea Scleroderma I am nineteen now and I am just wondering if this could get any worse and if I should be getting it checked out more with a specialist...
(Italiano) Lele: Mia Madre e Sclerodermia La storia riguarda mia madre. E' morta il 04.05.72 all'età di 48 anni. Oggi ricorre il suo anniversario. Cominciò a stare male all'incirca l'anno precedente...
(Update) Emma: Linear Scleroderma On December 2, 2002, at the age of twenty-six, I had an operation to make my face look similar to everbody else's. My surgery was done at Middlemore Hospital in New Zealand...
(Italiano) Anghelita: Scleroderma di Zia Lia Questo é avvenuto nel 1984 io ero una ragazzina. Il ricordo di Zia Lia è sempre vivo in me...
(Update) Jody: Fibromyalgia/Difficult Diagnosis My ANA came back positive again, at 1:160 mixed. My rheumatologist still claims that she thinks I am a false positive...
Lynn F: Raynaud's and Scleroderma So on November 11th my finger was amputated just above the top knuckle. Unfortunately, an infection set in...
(Italiano) Girasole: Sindrome di Sjogren Questa brevemente e' la mia storia se qualcuno/a vive la mia stessa situazione ed ha voglia di parlarne puo' scrivermi all'indirizzo e-mail pubblicato...
Annabella: Mother of Daughter with Linear/Morphea Scleroderma A mother's intuition never fails. When I first noticed the marks on my little girl's left thigh during bath time last summer, I got a sick feeling in my stomach...
(Update) Jackie S: Overlap Syndrome I went to see another gastroenterologist last Friday, and he performed another endoscope. He discovered scleroderma in my esophagus, as well as a hiatal hernia...
Donna M: CREST Scleroderma It all started with an infection at the end of my index finger in December 1999. My finger became red, inflamed and sore to touch...
Donna H: CREST, Autoimmune Hepatitis, Fibromyalgia I also have degenerative disc disease, osteoarthritis, anxiety/depression/panic disorder, irritable bowel...
Lisa D: Morphea Scleroderma I have had morphea scleroderma for twenty-eight years. I first noticed it when I was seven years old...
Jackie S: Overlap Syndrome For as long as I can remember I have had terribly dry skin and a very hoarse voice with dry mouth...
(Update) Jody: Fibromyalgia/Difficult Diagnosis My doctors insist this isn't scleroderma, but is idiopathic. My manometry yielded nonspecific symptoms with no etiology (cause) to explain it...
(Update) Annette: Diffuse Scleroderma On April 18, 2003, I went to see Dr. Richard Burt in Chicago at Northwestern Medical Facility about a stem cell transplant...
Lisa C: Limited Scleroderma My mother has rheumatoid arthritis (RA) and my thirteen-year-old daughter has what is believed to be early lupus...
Go to January-April 2003 Personal Stories

2014 New Personal Stories

Sheri M: CREST Syndrome (Update) It has been three years since I've posted and I am happy to say I am still doing well...
More New Stories
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Go to June 2003 Personal Stories
 

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