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December 2003

Laura S: Morphea Scleroderma It is frustrating that there is such a lack of knowledge for this condition and that I have had to go through the last thirteen years with very little support from doctors...
Lenor: Polymyositis, Pulmonary Fibrosis and Raynaud's Phenomenon In May of 1999, I was diagnosed with polymyositis and Raynaud's phenomenon then, in March of 2001, with pulmonary fibrosis...
Betty Fults: CREST Scleroderma I would like to talk with someone that has feeding tubes also. Maybe that will help me...
(Update) Judy R. Thompson Devlin: Diffuse with CREST In July I met a special man, Jim Devlin. In November he asked me to marry him and on December 18th we were married by "Santa" who just happened to be a Justice of the Peace...
Claude: Eosinophilic Fasciitis I am a forty-four-year-old male from Ottawa, Canada. In the late spring, early summer of 2003, my wife noticed some red splotches on my lower legs...
(Update) Trish: Spouse of a Diffuse Scleroderma Patient My husband is now in the late stages of this disease. His doctor in Baltimore now wants to see him every three months...
Lancia: Amica di una Paziente Affetta da Morphea Qualche giorno fa hanno diagnosticato ad una mia cara amica (27 anni) la sclerodermia: penso che la Morphea dalle descrizioni riportate nel sito...
(Update) Chris Beck:In Memory of My Mother, Veta Breit I can fight it like my mom did if that is what I have. She was a fighter and so am I. I desperately need help please...
Faye: Morphea Scleroderma At the age of about six or seven, I developed what looked like a bruise on the front of my left thigh. It started off as a small purplish spot...
Christin: Linear Scleroderma My name is Christin. I am a twenty-year-old college student. I have had scleroderma for as long as I can remember...
Go to November 2003 Personal Stories

New Personal Stories

We are revising our personal story submission program. If you would like to post or update an existing story on our site, please email isn@sclero.org.
Sheri M: CREST Syndrome (Update) It has been three years since I've posted and I am happy to say I am still doing well...
Go to January 2004 Personal Stories

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