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December 2003

Laura S: Morphea Scleroderma It is frustrating that there is such a lack of knowledge for this condition and that I have had to go through the last thirteen years with very little support from doctors...
Lenor: Polymyositis, Pulmonary Fibrosis and Raynaud's Phenomenon In May of 1999, I was diagnosed with polymyositis and Raynaud's phenomenon then, in March of 2001, with pulmonary fibrosis...
Betty Fults: CREST Scleroderma I would like to talk with someone that has feeding tubes also. Maybe that will help me...
(Update) Judy R. Thompson Devlin: Diffuse with CREST In July I met a special man, Jim Devlin. In November he asked me to marry him and on December 18th we were married by "Santa" who just happened to be a Justice of the Peace...
Claude: Eosinophilic Fasciitis I am a forty-four-year-old male from Ottawa, Canada. In the late spring, early summer of 2003, my wife noticed some red splotches on my lower legs...
(Update) Trish: Spouse of a Diffuse Scleroderma Patient My husband is now in the late stages of this disease. His doctor in Baltimore now wants to see him every three months...
Lancia: Amica di una Paziente Affetta da Morphea Qualche giorno fa hanno diagnosticato ad una mia cara amica (27 anni) la sclerodermia: penso che la Morphea dalle descrizioni riportate nel sito...
(Update) Chris Beck:In Memory of My Mother, Veta Breit I can fight it like my mom did if that is what I have. She was a fighter and so am I. I desperately need help please...
Faye: Morphea Scleroderma At the age of about six or seven, I developed what looked like a bruise on the front of my left thigh. It started off as a small purplish spot...
Christin: Linear Scleroderma My name is Christin. I am a twenty-year-old college student. I have had scleroderma for as long as I can remember...
Go to November 2003 Personal Stories

2014 New Personal Stories

Sheri M: CREST Syndrome (Update) It has been three years since I've posted and I am happy to say I am still doing well...
More New Stories
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