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Stories by Month Posted
January 2005
Sherrill: My Experience with Anemia Since I became ill with diffuse scleroderma just over eight years ago, I have found that anemia is a quite complex subject...
D.M. Hoffe: Progressive Systemic Sclerosis (Scleroderma CREST) After an endoscopy it was discovered I had a Watermelon Stomach...
(Italiano) Mony: Sindrome di Sjogren Questa malattia l'ho scoperta circa 10 anni fr, con sitomi di tipo secchezza alla pelle, senza saliva, molti problemi ai denti...
Janice E: CREST/Fibromyalgia At some point I came to the realization that what I was feeling just could not be normal. By this time my hands were swelling...
(Update) Pam: Systemic Sclerosis for 27 Years Last year it was discovered that my right lung had a very rapid progression of pulmonary fibrosis...
(Update) Marian: Watermelon Stomach Since posting my story here, people have been writing to me about watermelon stomach or GAVE. Many people suffered for months before diagnosis...
(Update) Star: Widow of Scleroderma Patient I want to thank all of you for being there for me and my three sons, Charles, Jay and David. I do not think I could have understood what scleroderma really was without you...
(Update) Sheri M: CREST Syndrome I am now forty-three years old and have remained stable since my previous entry. I do have a problem with fibromyalgia and joint pain, especially in the winter months...
Yolima: Diffuse Scleroderma I was misdiagnosed for more than a year with so many diseases and given all types of medication for different problems except for the real disease...
Kevin: Undiagnosed Scleroderma, Lupus, Mixed Connective Tissue Disease, Rheumatoid Arthritis, etc.? All I do is live, sleep and breathe the pain in my hand...
Rachelle: Interstitial Cystitis I am just happy after two and a half years to know that I have a real answer and I can get better...
Lorna: Undiagnosed Scleroderma? When I went to the hospital this young doctor came in and looked at my hands. He said that he thought I had Raynaud's and scleroderma...
New Personal Stories
Alana: Scleroderma (Peru) I cannot open my mouth completely, I have lost strength in my hands, I have breathing problems, my face looks different, my skin is really tight and I have lost my appetite...
(Español/Spanish) Alana: Paciente Nuevo con Esclerodermia (Peru) Le dije que ya no podía abrir la boca completamente, he perdido la fuerza de las manos, tengo problemas respiratorios, mi rosto está diferente, mi piel está dura y he perdido casi el apetito...
Kristy C: Generalized Morphea The only place where I do not have any morphea is my face, which I am very thankful for...
(Update) Raymond: Surviving Son of Scleroderma Patient On October 19th, the Herbert family lost another member of the family to scleroderma. My uncle Edmond has passed on...
Sharon H: Scleroderma/Morphea It has been thirty-two years living with this and it has progressively gotten much worse and has spread...
Teena: En Coup De Sabre My mother and I went to Johns Hopkins Hospital. They did what was called 'Grand Rounds' where about fifty doctors were looking at me taking pictures and videotaping me...
More New Stories: November 2008
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Go to February 2005 Personal Stories
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