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Patient & Caregiver Stories Main Menu
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Stories by Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms
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Stories by Month Posted
February 2005
Lois: Fibromyalgia with Possible CREST When I read Carla's story it almost sounded like mine! When I was in tenth grade, Raynaud's started and a horrible kind of rash...
Bree: My Father Died from Aspiration Pneumonia I do not fully understand how or why this form of disease would cause a person to die...
(Turkish) Ruko: Sistemik Skleroz Mart itibari ile sistemik skeleroz tanisi ile Cerrahpasa Tip Fakultesi Romotoloji servisinden taburcu oldum...
NB: Dermatomyositis I just knew then that my child's father would leave me, but he stood by my side and later became my husband even when I thought I looked like a monster..
(Update) Tami: Morphea Scleroderma After seeing many physicians, they have decided I now have generalized morphea and linear, morphea profunda, and systemic scleroderma. I also have mild decreased diffusion capacity with my lungs...
(Italiano) Emy: Sindrome di Raynaud Li quale mi ha diagnosticato la sindrome di Raynaud, connettivite da definire nel tempo e polialtrite...
(Italiano) Lucia: Sclerodermias a Colpo di Sciabola La lesione c depressa, larga circa un centimetro,di coloro scuro, localizzata in posizone centrale sulla fronte...
(Update) Jeri-Lou: Watermelon Stomach Now the doctors are talking about removing half of my stomach to help cure my watermelon stomach. I am hoping to hear from someone who might have had this done...
New Personal Stories
Mila: Morphea Now I am twenty-five years old, and that spot has grown throughout my right leg and on one side of my belly button...
(Español/Spanish) Mila: Morfea Hoy en día tengo 25 años y esa mancha está en toda mi pierna derecha y al lado de mi ombligo...
(Español/Spanish) (Update) Jeins: Esclerodermia Sistemica Difusa y Dermatopolimiositis Ya había escrito mi historia hace 3 años cuando recién estaba pasando por la enfermedad. Para quienes no lo saben tengo esclerodermia y dermatomiositis desde los 19 años.
Alana: Scleroderma (Peru) I cannot open my mouth completely, I have lost strength in my hands, I have breathing problems, my face looks different, my skin is really tight and I have lost my appetite...
(Español/Spanish) Alana: Paciente Nuevo con Esclerodermia (Peru) Le dije que ya no podía abrir la boca completamente, he perdido la fuerza de las manos, tengo problemas respiratorios, mi rosto está diferente, mi piel está dura y he perdido casi el apetito...
Kristy C: Generalized Morphea The only place where I do not have any morphea is my face, which I am very thankful for...
(Update) Raymond: Surviving Son of Scleroderma Patient On October 19th, the Herbert family lost another member of the family to scleroderma. My uncle Edmond has passed on...
More New Stories: November 2008
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Go to March 2005 Personal Stories
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