[Skip to Content]
Patient & Caregiver Stories Main Menu
(English) Stories by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z
Stories in Other Languages: French | German | Greek | Italian | Polish | Romanian | Russian | Spanish | Turkish
Stories by Date Posted: 1999 2000 2001 2002 2003 2004 2005 2006 2007 2008 2009 2010
Stories by Month Posted
2011: Jan-Jul
2010: Jan-Apr May-Dec
2009: Jan-Feb Mar-Apr May Jun Jul Aug-Dec
2008: Jan Feb-Sep Oct Nov-Dec
2007: Jan-May Jun Jul Aug Sep Oct-Dec
2006: Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov-Dec
2005: Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2004: Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2003: Jan -Apr May Jun Jul Aug Sep Oct Nov Dec
2002: Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2001, 2000, 1999

March 2005

Angel: Linear Scleroderma I have linear scleroderma. I have had it for a little over five years and I am only twelve...
Keith H: Eosinophilic Fasciitis (EF) I have a rare skin disease called eosinophilic fascitiis, a skin and muscle disease which causes tightness of the skin, and sometimes a reddish coloration of the skin in areas...
Martina: Linear Morphea (Ireland) I am twenty-four years old. I was diagnosed with linear morphea in September...
Millie: Morphea I was diagnosed with morphea scleroderma two years ago at age eleven. I want to know more people like me...
(Update) Trish: Spouse of a Diffuse Scleroderma Patient My husband had the surgery and his fingers are now fused into an open position. He will have the other hand done in June, at the Johns Hopkins Bayview Hospital...
Jill K: Lupus with GAVE (Watermelon Stomach) My hemotologist and GI specialists are very supportive but I am so frustrated at how little any one seems to know about GAVE disease...
Alicia B: Localized Morphea with possible Parry Romberg Syndrome The doctor kept saying something had eaten away at all the fatty tissue and the muscles which left it just skin, blood, bone, and nerve so when you look at it, it looks like I have dirt on my face and a gaping hole to go with it...
(Italiano) Ely: Sindrome di Raynaud Due anni fa ho incontrato una ragazza con il mio stesso problema...
Anita: Lichen Sclerosus et Atrophicus My concern is that it is spreading all over my body: both legs, my back, my neck and moving toward my face...
(Español/Spanish) Nora: Esclerodermia Morfea Les agradeceria que me dieran mas informacion a cerca de los tratamientos...

New Personal Stories

Kristi U: Systemic Scleroderma We sold our motel business because it hurt me so bad to work each and every day...
Chris D: Systemic Scleroderma About eighteen months ago my entire body began going haywire...
Iko H: Limited Systemic Sclerosis (Belgium) I am fifty-one years old and in May 2011 my diagnosis of scleroderma was confirmed. I am studying for horse veterinarian and am in my last year...
Michelle P: Sjögren's Syndrome I went to see Professor Hughes in London in 2010...
More New Stories
Submit Your Patient, Caregiver or Survivor Story in:
Arabic  | Dutch  | English  | Español  | Deutsche (German)
Italiano  | Polski  | Russian  | Spanish  | Turkish  | Other Languages
We will edit your story, create original artwork to decorate it, prepare it for the web, and post it on this site. Just fill out our simple Story Submission Form for your story, updates, or email address changes.
 
Go to April 2005 Personal Stories
About the ISN

This website is certified by Health On the Net Foundation. Click to verify.We are a full-service nonprofit 501(c)(3) providing stellar worldwide research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. This site complies with the HONcode standard for trustworthy health information: verify here.

 

Scleroderma Hotline
Toll Free U.S. 1-800-564-7099
Direct Line: 1-952-831-3091

Post a message in Sclero Forums
Email: isn@sclero.org

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702
United States

AKA Scleroderma from A to Z and SCLERO.ORG
Privacy Policy, Financial Disclosure, and Disclaimer.

Home   Medical   News   Sclero Forums   Support   Translations

© Copyright 1998-2013 International Scleroderma Network
All Rights Reserved