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Patient & Caregiver Stories Main Menu
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Stories by Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms
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Stories by Month Posted
April 2005
Bwana: Keloids The keloids have spread all over my face, back, chest, arms and legs...
Leeben: Limited Scleroderma and CREST I won't go into how many doctors I had to visit before someone took me seriously; it was a total nightmare...
Krisha S: Multiple Autoimmune Condition I have multiple sclerosis (MS), fibromyalgia, and Stiff Person Syndrome...
Nats: Morphea One thing I often wonder about is whether this condition could have been caused by a tetanus jab I had a few weeks before I noticed the first mark appearing...
(Update) Gerald: Spouse of Scleroderma Patient (In loving memory of Sharon) I believe if we would have known Sharon had scleroderma years ago and we would have been doing these tests, Sharon would have had at least a few more years, possibly longer...
Christine M: Morphea My doctors do not know what to do anymore and that is the scary part for me...
(Update) Gerald: Spouse of Scleroderma Patient (In loving memory of my mom, by Amy.) My mother passed on March 10, 2005, of this disease. I am her youngest daughter, and I was there when everything went downhill...
New Personal Stories
Mila: Morphea Now I am twenty-five years old, and that spot has grown throughout my right leg and on one side of my belly button...
(Español/Spanish) Mila: Morfea Hoy en día tengo 25 años y esa mancha está en toda mi pierna derecha y al lado de mi ombligo...
(Español/Spanish) (Update) Jeins: Esclerodermia Sistemica Difusa y Dermatopolimiositis Ya había escrito mi historia hace 3 años cuando recién estaba pasando por la enfermedad. Para quienes no lo saben tengo esclerodermia y dermatomiositis desde los 19 años.
Alana: Scleroderma (Peru) I cannot open my mouth completely, I have lost strength in my hands, I have breathing problems, my face looks different, my skin is really tight and I have lost my appetite...
(Español/Spanish) Alana: Paciente Nuevo con Esclerodermia (Peru) Le dije que ya no podía abrir la boca completamente, he perdido la fuerza de las manos, tengo problemas respiratorios, mi rosto está diferente, mi piel está dura y he perdido casi el apetito...
Kristy C: Generalized Morphea The only place where I do not have any morphea is my face, which I am very thankful for...
(Update) Raymond: Surviving Son of Scleroderma Patient On October 19th, the Herbert family lost another member of the family to scleroderma. My uncle Edmond has passed on...
More New Stories: November 2008
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Go to May 2005 Personal Stories
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International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702
USA
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