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November 2005
(Español/Spanish) Jessica: Madre de Paciente con Esclerodermia Localizada en Golpe de Sable Tengo una niña de 6 años de edad, le diagnosticaron Esclerodermia Lineal en golpe de sable desde los 3 años...
Jessica: Morphea I know I will not let this morphea stop me. I am going to continue living life to the full like any other twelve-year-old girl...
Catherine C: Surviving Daughter of Pulmonary Fibrosis Patient Less than twelve months later, on September 8, 2005, my mum died in the hospital, after suffering a collapsed lung three weeks earlier...
(Update) Christine S: Diffuse Scleroderma, Stage 2 It has been three years since my story was posted on this page and trust me, life has not slowed an iota—medically speaking at least...
(Update) Silezia: Mixed Connective Tissue Disease (South Africa) I got married to my high school sweetheart and we have a beautiful two year old boy. His birth had complications as he was born eleven weeks prematurely...
(Italiano) Teresa: Sarr una Sclerodermia? Se qualcundo di voi avesse i suoi stessi sintomi ci consigli un esame plu specifico per scoprire quanto prima la malattia, spesso sugli esiti le scrivono sospetta collagenopatia...
(Italiano) Pamy: Sclerodermia Sono due anni che sto' facendo una cura a base di cortisone...
Janie: Morphea And it scares me because the feeling I have on my back is weird...
Keua: Possibly Scleroderma I finally decided to see my doctor when I could not even straighten my fingers without pain and discomfort and was feeling extremely lethargic...
Avril: Morphea The consultants in Nottingham, United Kingdom, have all shaken their heads in shock and said that they cannot provide treatment to me...
Caroline: Niece of Scleroderma Patient We are trying to get my aunt into a nursing home...
Lynsey: Daughter of Patient with Scleroderma and Lupus My mother has had all but four fingers amputated, all of her toes on her left foot and her right leg up to her knee has been amputated...
Missy K: Diffuse Scleroderma (South Africa) I am on chemotherapy and often feel sick. I would like to correspond with other sufferers...
Annette G: MCTD, Systemic Scleroderma, Chronic Kidney Disease, CFS, Fibromyalgia, Trigeminal Neuralgia, TMJ People think that because I am a nurse I have all the answers. Well guess what? I don't...
New Personal Stories
Maria T: Daughter of Deceased Scleroderma Patient (Italy) He, upon looking at my mom's face and hands diagnosed her with sclerodermia, in fact he took care of her until the end...
(Italiano) Maria T: Figlia di una Paziente Defunta di Sclerodemia (Italia) Lui, come vide a mia madre disse "tu hai la sclerodermia", guardandole le mani e la faccia...
(Update) Dee B: Limited Scleroderma/CREST Syndrome (South Africa) There is so much I want to add to my original letter after reading more of other peoples stories. I am certainly not getting better but wish I was...
Tessa: Morphea The nurse just told me that I have morphea and knew nothing about it and she told me to look online for information...
More New Stories: August-November 2009
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Go to New Patient Stories: October 2005
 
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