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February 2006
Julie B: Mother of Linear/Morphea Scleroderma Patient Her right leg is badly affected with a lot of scarring and muscle wasting and also the leg length...
Liliana: Morphea (Argentina) I have spots in my legs, hips, back and some in my arms...
(Español) Liliana: Escleroderma Morfea (Argentina) Mis manchas están en piernas, caderas, espalda y algunas en los brazos...
Jenny S: Morphea, etc. After a biopsy, I was diagnosed with morphea at age fourteen. A small spot, size of a quarter on my lower back that progressed to the size of two of my hands...
(Update) Annette G: MCTD, Systemic Scleroderma, Chronic Kidney Disease, CFS, Fibromyalgia, Trigeminal Neuralgia, TMJ My results with my pulmonologist revealed I have interstitial and restrictive lung disease. My heart catheterization was negative for pulmonary hypertension...
Karen C: Daughter of Diffuse Scleroderma Patient (Chile) My father is Juan, he's fifty-two and suffers from diffuse scleroderma...
(Español/Spanish) Karen C: Hija de Paciente con Esclerodermia Difusa (Chile) Mi padre se llama Juan, tiene 52 años y padece esclerodermia difusa...
New Personal Stories
Mila: Morphea Now I am twenty-five years old, and that spot has grown throughout my right leg and on one side of my belly button...
(Español/Spanish) Mila: Morfea Hoy en día tengo 25 años y esa mancha está en toda mi pierna derecha y al lado de mi ombligo...
(Español/Spanish) (Update) Jeins: Esclerodermia Sistemica Difusa y Dermatopolimiositis Ya había escrito mi historia hace 3 años cuando recién estaba pasando por la enfermedad. Para quienes no lo saben tengo esclerodermia y dermatomiositis desde los 19 años.
Alana: Scleroderma (Peru) I cannot open my mouth completely, I have lost strength in my hands, I have breathing problems, my face looks different, my skin is really tight and I have lost my appetite...
(Español/Spanish) Alana: Paciente Nuevo con Esclerodermia (Peru) Le dije que ya no podía abrir la boca completamente, he perdido la fuerza de las manos, tengo problemas respiratorios, mi rosto está diferente, mi piel está dura y he perdido casi el apetito...
Kristy C: Generalized Morphea The only place where I do not have any morphea is my face, which I am very thankful for...
(Update) Raymond: Surviving Son of Scleroderma Patient On October 19th, the Herbert family lost another member of the family to scleroderma. My uncle Edmond has passed on...
More New Stories: November 2008
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Go to New Patient Stories: January 2006
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