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April 2006
(Update) Leeben: Limited Scleroderma and CREST Since writing the first time, my disease has become progressively worse. I have increasing kidney damage which limits the kind of medications I can take...
Andi P: UCTD and Possible Scleroderma It is believed that I do have an autoimmune disease they are not sure if it is systemic or not, but I know what I live through on a daily basis...
R.G.: Raynaud's and Chillblains Within just a few minutes of vigorous swimming all of the chillblains had disappeared...
Nancy H: Raynaud's I also have the beginning stages of Crohn's, panniculitis, rheumatoid arthritis, and now Raynaud's...
Kathy M: CREST (Limited Systemic Scleroderma) If you do not have the right doctor, do not get furious, move on...
(Update) Donna C: Undifferentiated Connective Tissue Disase (UCTD) It has been three years since I was diagnosed with UCTD. Last year I finally realized I had a disease. It was so hard to understand that I was really sick because I kept getting symptoms but no real concrete disease...
(Update) Trish: Spouse of a Diffuse Scleroderma Patient My husband had the second surgery on his other hand but it was not as successful as the first...
Merrie: Mother of Daughter with Raynaud's and Fibromyalgia? They said it might mean something or not and referred her to a rheumatologist, but he just blew it off as nothing...
(Update) Jackie S: Overlap Syndrome I had about four months of tolerable pain. Then we moved up to Washington and the story begins...
New Personal Stories
Alana: Scleroderma (Peru) I cannot open my mouth completely, I have lost strength in my hands, I have breathing problems, my face looks different, my skin is really tight and I have lost my appetite...
(Español/Spanish) Alana: Paciente Nuevo con Esclerodermia (Peru) Le dije que ya no podía abrir la boca completamente, he perdido la fuerza de las manos, tengo problemas respiratorios, mi rosto está diferente, mi piel está dura y he perdido casi el apetito...
Kristy C: Generalized Morphea The only place where I do not have any morphea is my face, which I am very thankful for...
(Update) Raymond: Surviving Son of Scleroderma Patient On October 19th, the Herbert family lost another member of the family to scleroderma. My uncle Edmond has passed on...
Sharon H: Scleroderma/Morphea It has been thirty-two years living with this and it has progressively gotten much worse and has spread...
Teena: En Coup De Sabre My mother and I went to Johns Hopkins Hospital. They did what was called 'Grand Rounds' where about fifty doctors were looking at me taking pictures and videotaping me...
More New Stories: November 2008
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Go to New Patient Stories: March 2006
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