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Stories by Month Posted
May 2006
Pearl: Surviving Daughter of Pulmonary Fibrosis Patient We watched her struggle daily to breathe, yet there was nothing anyone could do, not even the doctor...
James S: Son of Watermelon Stomach Sufferer Last year, my mother was diagnosed as a celiac. Since then a number of other problems have risen to the surface...
Carmen: Linear Morphea, En Coup de Sabre I am an otherwise healthy, thirty-eight-year-old female, diagnosed with the en coup de sabre form of linear scleroderma...
Emily: Undiagnosed (Switzerland) I have had scleroderma for almost six years. For over four years doctors haven't said anything, surely because they do not even know what exactly is happening to me...
(Italiano) Emily: Non Diagnosticada Da quasi 6 anni ho sclerodermia. Per ben 4 anni i medici non mi hanno detto niente, sicuramente perché neanche loro sapevano bene cosa avessi di preciso...
Ana Lucia: Diffuse Scleroderma I am twenty years old and I was diagnosed with diffuse systemic scleroderma a year and a half ago...
(Español/Spanish) Ana Lucia: Esclerosis Sistemica Difusa Estoy en tratamiento de corticoides. Y ciclofosfamida llevo un año y medio en hospitales he tenido que ingresar...
New Personal Stories
Alana: Scleroderma (Peru) I cannot open my mouth completely, I have lost strength in my hands, I have breathing problems, my face looks different, my skin is really tight and I have lost my appetite...
(Español/Spanish) Alana: Paciente Nuevo con Esclerodermia (Peru) Le dije que ya no podía abrir la boca completamente, he perdido la fuerza de las manos, tengo problemas respiratorios, mi rosto está diferente, mi piel está dura y he perdido casi el apetito...
Kristy C: Generalized Morphea The only place where I do not have any morphea is my face, which I am very thankful for...
(Update) Raymond: Surviving Son of Scleroderma Patient On October 19th, the Herbert family lost another member of the family to scleroderma. My uncle Edmond has passed on...
Sharon H: Scleroderma/Morphea It has been thirty-two years living with this and it has progressively gotten much worse and has spread...
Teena: En Coup De Sabre My mother and I went to Johns Hopkins Hospital. They did what was called 'Grand Rounds' where about fifty doctors were looking at me taking pictures and videotaping me...
More New Stories: November 2008
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Go to New Patient Stories: April 2006
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