Over 2,200+ pages in 22 languages!
 
Patient & Caregiver Stories Main Menu
(English) Stories by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z
All Stories by Date Posted: 1999 2000 2001 2002 2003 2004 2005 2006 2007 2008
Stories by Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms
Stories by Language: French | German | Greek | Italian | Polish | Romanian | Russian | Spanish | Turkish
Stories by Month Posted
September 2006
Aurora: Linear Scleroderma I am always very tired, and I suffer from pain that will not go away no matter what I do...
(Español/Spanish) Aurora: Esclerodermia Lineal Estoy agotada continuamente, y padezco dolores que no se quita con nada...
Monica O: Daughter of Mother with CREST It is awful to see how she gets worse day by day...
(Español/Spanish) Monica O: Hija de Paciente con Esclerodermia CREST Me gustaría saber si existe algo para atenuar ese dolor y mejorar mínimamente su calidad de vida...
Carolina: Linear Scleroderma As time went by it disseminated throughout my leg and reached my foot...
(Español/Spanish) Carolina: Esclerodermia Lineal Luego de multiples examenes, de reiteradas visitas a diferentes dermatólogos e inmunólogos diagnosticaron una escleroderma localizada de tipo lineal...
Edna S: Linear Scleroderma I am desperate because I know this is a deteriorating illness...
(Español/Spanish) Edna S: Esclerodermia Lineal Estoy desesperada por que sé que esto es una enfermedad deteriorante...
Zuly: Morphea I would like to help people who suffer from it and get to know others with the same illness...
(Español/Spanish) Zuly: Morfea Quisiera ayudar a las personas que la padecen y conocer otros casos...
New Personal Stories
Alana: Scleroderma (Peru) I cannot open my mouth completely, I have lost strength in my hands, I have breathing problems, my face looks different, my skin is really tight and I have lost my appetite...
(Español/Spanish) Alana: Paciente Nuevo con Esclerodermia (Peru) Le dije que ya no podía abrir la boca completamente, he perdido la fuerza de las manos, tengo problemas respiratorios, mi rosto está diferente, mi piel está dura y he perdido casi el apetito...
Kristy C: Generalized Morphea The only place where I do not have any morphea is my face, which I am very thankful for...
(Update) Raymond: Surviving Son of Scleroderma Patient On October 19th, the Herbert family lost another member of the family to scleroderma. My uncle Edmond has passed on...
Sharon H: Scleroderma/Morphea It has been thirty-two years living with this and it has progressively gotten much worse and has spread...
Teena: En Coup De Sabre My mother and I went to Johns Hopkins Hospital. They did what was called 'Grand Rounds' where about fifty doctors were looking at me taking pictures and videotaping me...
More New Stories: November 2008
Submit Your Patient, Caregiver or Survivor Story in:
Arabic  | Dutch  | English  | Español  | Deutsche (German)
Italiano  | Polski  | Russian  | Spanish  | Turkish  | Other Languages
We will edit your story, create original artwork to decorate it, prepare it for the web, and post it on this site. Just fill out our simple Story Submission Form for your story, updates, or email address changes.
Keep on Surfing!
Go to New Patient Stories: August 2006
Contact ISN. We are a full-service nonprofit agency.
Email: isn@sclero.org or
Post in Sclero Forums!
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702
USA
Toll Free Hotline in U.S.
1-800-564-7099
Direct Line
1-952-831-3091 (U.S.)
(We are also known as the Scleroderma from A to Z web site.)
© Copyright 1998-2008 International Scleroderma Network
All Rights Reserved