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Stories by Month Posted
October 2006
Angela M: Diffuse Scleroderma The rheumatologist that treats me says it is due to the illness, but my orthopedist says it is a problem that should be operated...
(Italiano) Angela M: Sclerodermia Diffusa La reumatologa che mi segue dice che è la malattia, l'ortopedico sostiene che è un dito a scatto forse da operare...
Santo: Sjogren's Syndrome (Italy) I visited gastroenterologist, mouth experts, dentists, ears, nose and throat specialists, and none of them could explain the symptoms...
(Italiano) Santo: Sindrome di Siogren La parte esofagea si è risolta, ma restavano i sintomi alla bocca e poi sono venuti quelli agli occhi (secchezza del dotto oculare)...
Federica: Morphea I have had localized morphea in my lower back for two years...
(Italiano) Federica: Morphea Da due anni sono affetta da Morphea localizzata in fondo alla schiena e dopo un anno su quasi tutta la parte superiore della schiena...
Cnette: Lichen Sclerosis et Atrophicus/Morphea Unfortunately I tried to relieve myself from the itching with over the counter products which did not work...
Michelle H: Sister, Daughter and Friend of Scleroderma Patients My father's lips shrunk and his nose became pointy to the extent we called it the bird disease as that is what he began to look like...
Hailee Vale: MCTD but Now Undiagnosed I still do not have any proper answers. I have my own theories as to what went wrong and I am waiting to see a rheumatologist...
Ed: Father of a Linear Morphea Patient A series of medications, steroids and creams has been applied, but Erwin's case seemed to be worsening...
Beth R: Eosinophilic Fasciitis My arms and legs are still tight and I still cannot make a fist...
Missy S: Lupus, Scleroderma, CREST and Depression They say I am not eligible for a medical card or disability. I have been fighting for four years...
(Update) Rosie: Limited Systemic Sclerosis As the time passes, fourteen years so far, I am finding life seems to be a continuous struggle to cope with my condition...
(Update) Jackie S: Overlap Syndrome After the two week training period, I got so sick I had to quit, which really annoyed me. I felt if I can handle this it would be great, give me something to do...
Tyler: Scleroderma, CREST Syndrome It is really confusing and the doctors say it is very rare for people my age to have it...
Tina M: Keloids My husband calls them my battle scars or unfinished tattoos...
Hope: Linear Morphea My mom took me to the doctor and for three months he treated it as ringworm...
Chris S: Mother of Linear Morphea Patient Whatever it was, I knew it should not be there...
Trudy Rose: Mother of Daughter who has Scleroderma I have been the caregiver for her when she needed me...
(Update) Jennifer: In Loving Memory of Diana and Gary Pralgo My mother passed away in 2003. My dad, Gary Pralgo, passed away this past June at the age of sixty-one...
(Update) Tami: Morphea and Systemic Scleroderma I have finally given in to the fact that I can no longer work. I have not worked for almost a year now...
Carlos: Linear Sclerodermia (En Coup de Sabre) I have been in treatment, but in my opinion I have not done much better, perhaps it is even worse...
(Español/Spanish) Carlos: Esclerodermia Lineal (En Coup de Sabre) Me he sometido a tratamientos y para mi apreciación sigo igual o peor...
Ariel D: Pansclerotic Morphea My first treatment was chemotherapy, then steroids, then light treatment...
Brittney: Morphea My daddy tells me all the time that a man will fall in love with me for me and my skin will not even be a factor...
Damaris: Morphea I am wondering if there is any treatment for this....
Silvia: Mother of Son with Morphea He went to a dermatologist and got a biopsy done. His diagnosis was "Late stage of Morphea"...
(Español/Spanish) Silvia: Madre de Paciente con Morfea Fue al especialista, dermatólogo, y le hicieron una biopsia, donde le salió como diagnóstico "Cuadro Morfologico en Etapa Tardia"...
Marla: Difficult Diagnosis and Anxiety I have never been diagnosed with Raynaud's but one of my toes turns white sometimes...
Kasey: Daughter of a Diffuse Scleroderma Patient The hardest part for my mother is accepting that she does have scleroderma and needs to face the facts about it...
Blanca: Morphea It has been very painful emotionally watching it just takes over my body with no recourse to find a cure...
Sheryl: Morphea The brown spots have spread all over my body including my face...
New Personal Stories
Alana: Scleroderma (Peru) I cannot open my mouth completely, I have lost strength in my hands, I have breathing problems, my face looks different, my skin is really tight and I have lost my appetite...
(Español/Spanish) Alana: Paciente Nuevo con Esclerodermia (Peru) Le dije que ya no podía abrir la boca completamente, he perdido la fuerza de las manos, tengo problemas respiratorios, mi rosto está diferente, mi piel está dura y he perdido casi el apetito...
Kristy C: Generalized Morphea The only place where I do not have any morphea is my face, which I am very thankful for...
(Update) Raymond: Surviving Son of Scleroderma Patient On October 19th, the Herbert family lost another member of the family to scleroderma. My uncle Edmond has passed on...
Sharon H: Scleroderma/Morphea It has been thirty-two years living with this and it has progressively gotten much worse and has spread...
Teena: En Coup De Sabre My mother and I went to Johns Hopkins Hospital. They did what was called 'Grand Rounds' where about fifty doctors were looking at me taking pictures and videotaping me...
More New Stories: November 2008
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