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Patient & Caregiver Stories Main Menu
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Stories by Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms
Stories by Language: French | German | Greek | Italian | Polish | Romanian | Russian | Spanish | Turkish
Stories by Month Posted
November/December 2006
(Update) Pam: Systemic Scleroderma for 34 Years Today I have just arrived back from a hospital visit once more. All seems okay with my lungs with taking the Tracleer, which has helped me greatly...
Daphne: Daughter of Scleroderma/Polymyositis/Antisynthetase Syndrome Overlap Patient By early 2005, she began to exhibit Raynaud's phenomenon. She was also having swelling in her face, hands and feet...
Deedra: Linear Scleroderma In the course of two years the scleroderma spread from under my knee to the top of my thigh...
Ellen: Interstitial Cystitis with Bladder Removal I feel like I have hit a dead end. My quality of life is worse than ever...
Lu: Sjogren's Syndrome (Italy) I have migrant polyarthritis and enormous digestive problems...
(Italiano) Lu: Sindrome di Sjogren Soffro di poliatrite migrante e ho enormi problemi digestivi, eppure mi sento viva e positiva...
Rafvis: Systemic Scleroderma (Italy) There were practically times when I had no sense of touch...
(Italiano) Rafvis: Sclerodermia Sistemica Ho girato tanti ospedali, hanno provato con cortisone, antistaminic, ma niente...
Lindsey: Eosinophilic Fasciitis (EF) My skin remains very thick and constricted...
Susi Q: Surviving Daughter of Scleroderma Patient We were told to go to the library and read about it...
Louise: Linear Scleroderma I got a bit of a fright when I read about scleroderma affecting the organs...
Roberta A: Systemic Sclerosis/Overlap Two rheumatologists both said because I did not have thick skin I did not have systemic sclerosis...
Karen H: Eosinophilic Fasciitis I am experiencing extreme fatigue and muscle pain on a daily basis...
(Update) Jo: Mother of a Child with Morphea Scleroderma As she has gotten older she has become more self-conscious of her leg, along with fact that she cannot wear the same shoes as other children...
Sylvia: Surviving Mother of Scleroderma Patient She had this disease from 2001 without the doctors realizing it...
Yally: Dermatitis with Linear/Morphea My daughter has a spot on her left leg, that almost covers it completely...
(Español/Spanish) Yally: Dermatitis con Consistencia en Morfea/Lineal Mi temor siempre ha sido el consumir indefinidamente la droga...
New Personal Stories
Mila: Morphea Now I am twenty-five years old, and that spot has grown throughout my right leg and on one side of my belly button...
(Español/Spanish) Mila: Morfea Hoy en día tengo 25 años y esa mancha está en toda mi pierna derecha y al lado de mi ombligo...
(Español/Spanish) (Update) Jeins: Esclerodermia Sistemica Difusa y Dermatopolimiositis Ya había escrito mi historia hace 3 años cuando recién estaba pasando por la enfermedad. Para quienes no lo saben tengo esclerodermia y dermatomiositis desde los 19 años.
Alana: Scleroderma (Peru) I cannot open my mouth completely, I have lost strength in my hands, I have breathing problems, my face looks different, my skin is really tight and I have lost my appetite...
(Español/Spanish) Alana: Paciente Nuevo con Esclerodermia (Peru) Le dije que ya no podía abrir la boca completamente, he perdido la fuerza de las manos, tengo problemas respiratorios, mi rosto está diferente, mi piel está dura y he perdido casi el apetito...
Kristy C: Generalized Morphea The only place where I do not have any morphea is my face, which I am very thankful for...
(Update) Raymond: Surviving Son of Scleroderma Patient On October 19th, the Herbert family lost another member of the family to scleroderma. My uncle Edmond has passed on...
More New Stories: November 2008
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Go to New Patient Stories: October 2006
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